isthisbug.blogspot.com

This Bug's Life

Seizure Facts and Myths. First, Do No What? 160;Sunday, June 28, 2015. I was cc'd on an email thread today and felt the need to respond. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. The email had this statement highlighted in it:. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils. Parents wa...

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This Bug's Life | isthisbug.blogspot.com Reviews

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Seizure Facts and Myths. First, Do No What? 160;Sunday, June 28, 2015. I was cc'd on an email thread today and felt the need to respond. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. The email had this statement highlighted in it:. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils. Parents wa...

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This Bug's Life | isthisbug.blogspot.com Reviews

https://isthisbug.blogspot.com

Seizure Facts and Myths. First, Do No What? 160;Sunday, June 28, 2015. I was cc'd on an email thread today and felt the need to respond. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. The email had this statement highlighted in it:. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils. Parents wa...

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isthisbug.blogspot.com

1

This Bug's Life: Test results and a rant.

http://www.isthisbug.blogspot.com/2015/06/test-results-and-rant.html

Seizure Facts and Myths. Test results and a rant. 160;Monday, June 1, 2015. It doesn't seem to make much difference what the answers are, and if the why's are brought to light. We don't DO anything with the extra information. What have *I* done differently than those other parents? Don't say burned out. I will cut you. I am not burned out, I am frustrated, feeling like helping Bug will NEVER happen and tired of being wrong for being right. Subscribe to: Post Comments (Atom). Epilepsy Association of Utah.

2

This Bug's Life: PECS Resources

http://www.isthisbug.blogspot.com/p/pecs-resources.html

Seizure Facts and Myths. From the PECS site:. Picture Exchange Communication System. Pyramind - PECS - USA. Developed by Andrew S. Bondy, Ph.D. and Lori Frost, M.S., CCC/SLP. PECS was developed in 1985 as a unique augmentative/alternative communication intervention package for individuals with autism spectrum disorder and related developmental disabilities. First used at the Delaware Autistic Program, PECS has received worldwide recognition for focusing on the initiation component of communication&#4...

3

This Bug's Life: June 2015

http://www.isthisbug.blogspot.com/2015_06_01_archive.html

Seizure Facts and Myths. First, Do No What? 160;Sunday, June 28, 2015. I was cc'd on an email thread today and felt the need to respond. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. The email had this statement highlighted in it:. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils. Parents wa...

4

This Bug's Life: Number 61: The Conversation

http://www.isthisbug.blogspot.com/2015/06/number-61-conversation.html

Seizure Facts and Myths. Number 61: The Conversation. 160;Monday, June 22, 2015. We had expected the call to come the next week (this week) and were quite surprised to be at lunch on Friday, June 19th, 2015 when the good Dr. called to tell us he had received the confirmation earlier than he thought. So they made the assay, and they ran it. A few times. They wanted to be absolutely sure before he called us. We were in a restaurant and I told him I would call him back. Well, we know that, but he told us why.

5

This Bug's Life: February 2015

http://www.isthisbug.blogspot.com/2015_02_01_archive.html

Seizure Facts and Myths. The fish tank story.or how I gave up on my mind. 160;Saturday, February 14, 2015. I have alluded to this story in public, told it in private and now.I share it with the world. My SN family will understand and laugh their asses off. I do now, but then.whole different story. Bug was 3 and a half, he had had 6 seizures or so , Taylor was 16 months and we still had hope. Who knows, not important.he was gone, I was alone and gloriously unaware of the poop-storm brewing. I go into the ...

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littlejsjourney.blogspot.com

Little J's Journey: Crossing All of Our Fingers and Toes

http://littlejsjourney.blogspot.com/2014/10/crossing-all-of-our-fingers-and-toes.html

Wednesday, October 8, 2014. Crossing All of Our Fingers and Toes. I'm not very good at being patient. I'm not very good at dealing with things that are out of my control. I kind of obsess about it and freak out. And I've currently gone off my anxiety meds. Bad idea! So whatever your beliefs, please pray with us, hope with us. We need a miracle, and we know with your love and support God can provide us with one, again. We love you and thank you for all of your love and support. October 9, 2014 at 9:35 PM.

tayisms.blogspot.com

Tay-isms: September 2010

http://tayisms.blogspot.com/2010_09_01_archive.html

Yes, she said that! Wednesday, September 1, 2010. First Day of Kindergarten! Tay has been extremely excited to go to Kindergarten, of course, she wants to skip it and go to 1st grade too. So, we got her all ready, she picked out her dress, I did her hair and we walked to the Bus Stop. And we waited, but the bus was late. Uh Oh. Sign of things to come? But I still had to go to school and prove to them that she was all inoculated and indoctrinated and stuff. So I waited a half hour and then headed over.

tayisms.blogspot.com

Tay-isms: The things she says...

http://tayisms.blogspot.com/2012/06/things-she-says.html

Yes, she said that! Monday, June 25, 2012. The things she says. Aren't so funny anymore. She is going through a phase where she is acting like she can't talk properly. It all started when I noticed that her front tooth was already 'in', behind her front baby tooth. Since then, it's been a steady stream of odd talking. Or she acts like she can't walk or move her arms well. We know it's pretend, she told us it was. But when will it stop? It's been a week already. Ugh, what is a Mom to do? 171; Older Post.

littlejsjourney.blogspot.com

Little J's Journey: Genetics!!!!

http://littlejsjourney.blogspot.com/2014/09/genetics.html

Tuesday, September 9, 2014. Today, I was a mess. I was literally shaking with anxiety. I hate that so much can ride on one person and one appointment. We get ONE hour every 12-18 months to come up with a testing plan towards finding a diagnosis. What if the doc is having a bad day? What if he's running late? What if technology is down? What if I piss him off? Soo much can make an appointment turn badly, and there is little to do but wait for the next one.18 months down the road. I seriously thought about...

littlejsjourney.blogspot.com

Little J's Journey: Life is a Rollercoaster

http://littlejsjourney.blogspot.com/2015/04/life-is-rollercoaster.html

Monday, April 27, 2015. Life is a Rollercoaster. Life is a Rollercoaster. I'm trying to hold on; sometimes I hold my breath and close my eyes, but I'm trying to enjoy the ride. Sometimes the scariest part is the incline, knowing what is coming and the anticipating the fear of falling. Sometimes the worst part is the fall. It's inevitable. You lack control. The pit in your stomach can feel like a thrill or it can make you want to vomit. I'm finally riding those small hills right now, and it feels great.

littlejsjourney.blogspot.com

Little J's Journey: May 2015

http://littlejsjourney.blogspot.com/2015_05_01_archive.html

Tuesday, May 19, 2015. We've been on quite the journey. And within that journey are dozens of other journeys. Including our genetic testing journey. The journey for answers. Our journey for a diagnosis. Unfortunately, my optimism was crushed in this post. My husband soon returned home from work and brought in the mail. I noticed the return address from Primary Children's Hospital and KNEW it was the letter from our geneticist. I was ecstatic. It was three pages long! And I wish it were only the medical s...

littlejsjourney.blogspot.com

Little J's Journey: October 2014

http://littlejsjourney.blogspot.com/2014_10_01_archive.html

Thursday, October 30, 2014. Too Much Brain to Contain. But the battle isn't over. There is still not enough room. His brain stem is still tight, but the doctors don't think they could do any better if they went back in. Jayson is just very small back in his brain stem area. But the brain stem is no longer the only issue. Jayson's head circumference is just barely over 45 centimeters. That's small, folks. That is off the charts small, and it has been 45 centimeters since he was about 8 months old. Or is i...

littlejsjourney.blogspot.com

Little J's Journey: January 2015

http://littlejsjourney.blogspot.com/2015_01_01_archive.html

Thursday, January 29, 2015. The Source of the Pain. We have discovered the source of my son's pain, which has now resolved itself. Here is the update I posted on FB:. And the reason for my rage? Sunday, January 11, 2015. I NEED YOU ALL. AGAIN. If you are not familiar with what is going on with Jayson and his pain, please catch up here. So this nurse is saying she doesn't believe me that my son is hurting because she hasn't seen him in the office because they won't let me have an appointment to be seen in...

littlejsjourney.blogspot.com

Little J's Journey: April 2015

http://littlejsjourney.blogspot.com/2015_04_01_archive.html

Monday, April 27, 2015. Life is a Rollercoaster. Life is a Rollercoaster. I'm trying to hold on; sometimes I hold my breath and close my eyes, but I'm trying to enjoy the ride. Sometimes the scariest part is the incline, knowing what is coming and the anticipating the fear of falling. Sometimes the worst part is the fall. It's inevitable. You lack control. The pit in your stomach can feel like a thrill or it can make you want to vomit. I'm finally riding those small hills right now, and it feels great.

littlejsjourney.blogspot.com

Little J's Journey: Undiagnosed??? Not for Long...

http://littlejsjourney.blogspot.com/2015/05/undiagnosed-not-for-long.html

Tuesday, May 19, 2015. We've been on quite the journey. And within that journey are dozens of other journeys. Including our genetic testing journey. The journey for answers. Our journey for a diagnosis. Unfortunately, my optimism was crushed in this post. My husband soon returned home from work and brought in the mail. I noticed the return address from Primary Children's Hospital and KNEW it was the letter from our geneticist. I was ecstatic. It was three pages long! And I wish it were only the medical s...

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This Bug's Life

Seizure Facts and Myths. First, Do No What? 160;Sunday, June 28, 2015. I was cc'd on an email thread today and felt the need to respond. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. The email had this statement highlighted in it:. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils. Parents wa...

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Torek, 05. maj 2009. Godba je že videl, kakšen globok vtis na Sapiense naredi zlato. In okrasje. Torej mu je bilo takoj jasno, da zgradbe vzbujajo pri Obiskovalcih veliko spoštovanje in drhtenje. Sploh pa simboli v kombinaciji z zlatom. Ob teh so kar vidno drhteli. Nič jim ni bilo potrebno reči, pa so drhteli. Obiskovalci so se imenovali tisti Prsti, ki so Zgradbe obiskovali. 171; je pogrmel. Življenje je grozna pot. In grozovito trpljenje! 171; je grmel z zlatega trona. Koliko denarja imate s seboj?