isthisbug.blogspot.com
This Bug's Life: First, Do No What?
http://isthisbug.blogspot.com/2015/06/first-do-no-what.html
Seizure Facts and Myths. First, Do No What? 160;Sunday, June 28, 2015. I was cc'd on an email thread today and felt the need to respond. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. The email had this statement highlighted in it:. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils. Parents wa...
isthisbug.blogspot.com
This Bug's Life: May 2015
http://isthisbug.blogspot.com/2015_05_01_archive.html
Seizure Facts and Myths. Little more than nothing. 160;Sunday, May 17, 2015. Do you ever feel like no matter what you do, life has other plans? No matter how much diligence, effort, study and action you engage in, it means nothing to the universe? Yea, me too. 160;Links to this post. What's a little recess among friends? 160;Monday, May 4, 2015. Maybe it's the moon, maybe it's the weather, but Bug's seizures have picked up a little. Still, not horrible but 4 yesterday and sitting at only 1 today. That ma...
isthisbug.blogspot.com
This Bug's Life: Longest. Week. Ever.
http://isthisbug.blogspot.com/2015/06/longest-week-ever.html
Seizure Facts and Myths. Longest. Week. Ever. 160;Tuesday, June 9, 2015. We received a phone call today, then an email, then a call to the EAU office. I had been busy getting stuff ready for membership meeting and got to returning the call later than I had intended. Although we know there is something genetically amiss with the Bugster, the thought of there actually being something found is foreign. That call led to this:. We need to verify the findings before we tell you what we are looking at. I can do...
isthisbug.blogspot.com
This Bug's Life: January 2015
http://isthisbug.blogspot.com/2015_01_01_archive.html
Seizure Facts and Myths. It's all about the eyes. 160;Saturday, January 31, 2015. The eyes may be the window to the soul, but with Autism, they are next to EVERYTHING *and* the soul. You can see what isn't there and as much as you can see what is. That was almost 3 years ago. Each year gets better and better and then came the CBD. Since starting that 4 months ago, he doesn't just look at us, he seeks us out. He WANTS us to look at him. 160;Links to this post. 160;Tuesday, January 27, 2015. He is seizing ...
isthisbug.blogspot.com
This Bug's Life: December 2014
http://isthisbug.blogspot.com/2014_12_01_archive.html
Seizure Facts and Myths. 160;Monday, December 15, 2014. I hate the look he gives me when he is having a complex partial seizure. The look that says: make it stop. And I hate having to wait to help him to see how bad it's going to get first. I hate having a threshold that changes based on seizure activity. Tonight is one of those changes. I love you little man. I WILL make it better. 160;Links to this post. 160;Tuesday, December 9, 2014. Because when we fail, we fail in spectacular ways at this house.
isthisbug.blogspot.com
This Bug's Life: The First Post - Meet Glenn's Diagnosis
http://isthisbug.blogspot.com/2015/06/the-first-post-meet-glenns-diagnosis.html
Seizure Facts and Myths. The First Post - Meet Glenn's Diagnosis. 160;Saturday, June 20, 2015. Let's cut to the chase shall we? Glenn is unique. Uniquely unique as it turns out. He has been diagnosed with KBG Syndrome. That, in itself, is rare (About 60 documented cases worldwide) but the really unique part of Glenn's diagnosis is that he has an insertion in the chromosome that is related to KBG Syndrome whereas most patients have a deletion or duplication. Chances are almost non-existent that his condit...
isthisbug.blogspot.com
This Bug's Life: Test results and a rant.
http://isthisbug.blogspot.com/2015/06/test-results-and-rant.html
Seizure Facts and Myths. Test results and a rant. 160;Monday, June 1, 2015. It doesn't seem to make much difference what the answers are, and if the why's are brought to light. We don't DO anything with the extra information. What have *I* done differently than those other parents? Don't say burned out. I will cut you. I am not burned out, I am frustrated, feeling like helping Bug will NEVER happen and tired of being wrong for being right. Subscribe to: Post Comments (Atom). Epilepsy Association of Utah.
isthisbug.blogspot.com
This Bug's Life: February 2015
http://isthisbug.blogspot.com/2015_02_01_archive.html
Seizure Facts and Myths. The fish tank story.or how I gave up on my mind. 160;Saturday, February 14, 2015. I have alluded to this story in public, told it in private and now.I share it with the world. My SN family will understand and laugh their asses off. I do now, but then.whole different story. Bug was 3 and a half, he had had 6 seizures or so , Taylor was 16 months and we still had hope. Who knows, not important.he was gone, I was alone and gloriously unaware of the poop-storm brewing. I go into the ...
isthisbug.blogspot.com
This Bug's Life: June 2015
http://isthisbug.blogspot.com/2015_06_01_archive.html
Seizure Facts and Myths. First, Do No What? 160;Sunday, June 28, 2015. I was cc'd on an email thread today and felt the need to respond. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. The email had this statement highlighted in it:. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils. Parents wa...