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The CLL Ranch

The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Sunday, April 14, 2013. More side effects from trial. So I took myself off the budesonide. It's taken a while, but the diarrhea has returned with a vengeance. So now I'...I dro...

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The CLL Ranch | thecllranch.blogspot.com Reviews
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The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Sunday, April 14, 2013. More side effects from trial. So I took myself off the budesonide. It's taken a while, but the diarrhea has returned with a vengeance. So now I'...I dro...
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The CLL Ranch | thecllranch.blogspot.com Reviews

https://thecllranch.blogspot.com

The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Sunday, April 14, 2013. More side effects from trial. So I took myself off the budesonide. It's taken a while, but the diarrhea has returned with a vengeance. So now I'...I dro...

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thecllranch.blogspot.com thecllranch.blogspot.com
1

The CLL Ranch: July 2011

http://thecllranch.blogspot.com/2011_07_01_archive.html

The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Sunday, July 10, 2011. Liver numbers have gone down on CAL-101. The worst part is that my cells are showing signs of 'clonal evolution' towards MDS. Taking FCR may force mutati...

2

The CLL Ranch: May 2011

http://thecllranch.blogspot.com/2011_05_01_archive.html

The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Tuesday, May 10, 2011. Now, crashing neutrophils. In fact, I feel fine! Sunday, another good day. Church was nice. By Sunday afternoon, I thought maybe I had crossed th...I'm o...

3

The CLL Ranch: Latest on GS-1101 (CAL-101)

http://thecllranch.blogspot.com/2012/11/latest-on-gs-1101-cal-101.html

The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Wednesday, November 21, 2012. Latest on GS-1101 (CAL-101). Happy Thanksgiving, all! That only lasted about a month, but thats what happened. After my transplant, which was abou...

4

The CLL Ranch: April 2012

http://thecllranch.blogspot.com/2012_04_01_archive.html

The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Monday, April 30, 2012. So what do I do now? Do I gamble more on CAL-101? Don't know. Will see. Let the docs look me over. 13 and one half years of CLL is long enough! His grou...

5

The CLL Ranch: More side effects from trial

http://thecllranch.blogspot.com/2013/04/more-side-effects-from-trial.html

The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Sunday, April 14, 2013. More side effects from trial. So I took myself off the budesonide. It's taken a while, but the diarrhea has returned with a vengeance. So now I'...Its b...

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tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: Why Wait?

http://tamarafowler.blogspot.com/2015/05/why-wait.html

May 19, 2015. Yesterday was a frustrating day at MDA. Results from my bone marrow biopsy were inconclusive on the day that we had thought. That we would decide on the next steps in my treatment plan. Instead, we would have to wait until the cytogenetics (FISH) results came back and probably reschedule another BMB. :/. I have leaned toward my stem cell’s doctor’s view because I like NOT having leukemia! While I have determined every day to lay this at the Lord’s feet, it does require a daily decisio...

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: Keep Believing!

http://tamarafowler.blogspot.com/2015/05/keep-believing.html

May 14, 2015. The other morning, I woke up and walked into the kitchen to get my coffee and found that my favorite wooden “Believe” plaque had fallen from the wall above my pantry door and shattered into several pieces. I was really sad. I have had that piece for quite some time and it was very special to me…for several reasons. 8220;May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope.”. 8220;So do not fear, for I am with you;.

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: May 2015

http://tamarafowler.blogspot.com/2015_05_01_archive.html

May 19, 2015. Yesterday was a frustrating day at MDA. Results from my bone marrow biopsy were inconclusive on the day that we had thought. That we would decide on the next steps in my treatment plan. Instead, we would have to wait until the cytogenetics (FISH) results came back and probably reschedule another BMB. :/. I have leaned toward my stem cell’s doctor’s view because I like NOT having leukemia! While I have determined every day to lay this at the Lord’s feet, it does require a daily decisio...

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: March 2015

http://tamarafowler.blogspot.com/2015_03_01_archive.html

March 25, 2015. Good News, Bad News. I described the pain to the PA who seemed a bit at a loss, but as soon as Dr. Shah came in, she seemed to know just what it was. The T-Cells are busy at work seeking and destroying the cancer cells! And in doing so, they emit a protein that causes inflammation in my body and makes me feel like crud. So the good news is that the T-Cells are working hard. The bad news is that it makes me feel lousy. It should not be permanent. Steroids are not an option on this trial.

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: July 2015

http://tamarafowler.blogspot.com/2015_07_01_archive.html

July 24, 2015. So we will continue to watch and wait. Fortunately, my doctor watches very closely! While I am very thankful for these results, it is difficult right now to understand…. WHY? Why am I given more time, more weeks, months, maybe even years with my family when others who have walked similar walks are not? I know as a believer that these are not questions that I will find answers to on this side of heaven. I know that God has numbered our days from the beginning. 8220;Yet this I call to mind.

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: December 2014

http://tamarafowler.blogspot.com/2014_12_01_archive.html

December 29, 2014. Round 2…Here We Go Again! So besides other matters such as unexplainable rashes, a throat biopsy that came back with a mixed message, and a parathyroid that still needs to come out, Dr. Shah has been looking at two possible options, actually three. 1) A DLI, donor lymphocyte infusion, which is where they use my donor’s lymphocytes for a mini transplant booster. The problem with the DLI is that there is a high risk of GVHD (graft versus host disease). 8220;Lowered immune system, hives, ...

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: Pray Hard. Sleep Well.

http://tamarafowler.blogspot.com/2015/06/pray-hard-sleep-well.html

June 2, 2015. Pray Hard. Sleep Well. 9786; Peter must have believed a little more than the prayer warriors did! During these last almost four years, our family, friends, the body of Christ, have prayed for me, for both of us. They have prayed for healing, for strength, for peace. While we are still walking this walk, and it seems that we will be for some time, God has more than answered these prayers! And He continues. He has given me time. He has given us peace. Make me dwell in safety.”. Rooted and bui...

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: July 2014

http://tamarafowler.blogspot.com/2014_07_01_archive.html

July 29, 2014. It’s Always Something! Many of you have been graciously asking for updates regarding my recent and ongoing doctor appointments. This summer, it seems that we keep going from one thing to another, with grandchildren visits interspersed throughout. I am thankful for the fun times with the kids! The last major trip down to MDA left us with the decision that we would wait until October before doing the next round of bone marrow biopsies, flow cytometry tests, CT’s, etc. Then he gave me some wo...

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: June 2015

http://tamarafowler.blogspot.com/2015_06_01_archive.html

June 15, 2015. Heritage: The Women in My Life. As I was thinking back about the influence of the women in my family, I first thought of my mom and her steadfast dedication to a near perfect home! It was neat, clean, and organized; we had three homemade meals per day, plus desserts. We were taught how to help and be a part of the daily chores. Mother ironed everything! With my mom…talking about any and everything while we did what we needed to do. Thank you Mamie, Mother, Aunt Maydene, Aunt Essie, Aunt Po...

tamarafowler.blogspot.com tamarafowler.blogspot.com

Our Journey...: June 2014

http://tamarafowler.blogspot.com/2014_06_01_archive.html

June 26, 2014. I’m not sure why I have waited this long to document the news and happenings of the past weeks. I think perhaps that I needed some answers, some resolution, before I put it here. Of course, everyone else already knows! Family, friends, Facebook! Everyone has been praying and encouraging. So I’m really not sure why I waited…. Early May. I had been waiting for my call from Dr. Shah regarding my bone marrow biopsy (BMB) results. I missed her call on Friday, May 9, while at the grocery store.

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The CLL Ranch

The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Sunday, April 14, 2013. More side effects from trial. So I took myself off the budesonide. It's taken a while, but the diarrhea has returned with a vengeance. So now I'...I dro...

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