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William's Way

Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Saturday, August 8, 2015. NO state includes all 56 recommended potentially fatal, but treatable, diseases in its Newborn Screening Program. Not one. Not your state. NOT ONE. IT IS PREVENTABLE. William could've been saved. Hundreds of babies COULD'VE been saved. Friends and family,. For my friends and family members that have had a baby, do you know exactly what your baby was tested for? Please help m...

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William's Way | sweetwilliamsway.blogspot.com Reviews
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Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Saturday, August 8, 2015. NO state includes all 56 recommended potentially fatal, but treatable, diseases in its Newborn Screening Program. Not one. Not your state. NOT ONE. IT IS PREVENTABLE. William could've been saved. Hundreds of babies COULD'VE been saved. Friends and family,. For my friends and family members that have had a baby, do you know exactly what your baby was tested for? Please help m...
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2 newborn screen
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William's Way | sweetwilliamsway.blogspot.com Reviews

https://sweetwilliamsway.blogspot.com

Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Saturday, August 8, 2015. NO state includes all 56 recommended potentially fatal, but treatable, diseases in its Newborn Screening Program. Not one. Not your state. NOT ONE. IT IS PREVENTABLE. William could've been saved. Hundreds of babies COULD'VE been saved. Friends and family,. For my friends and family members that have had a baby, do you know exactly what your baby was tested for? Please help m...

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sweetwilliamsway.blogspot.com sweetwilliamsway.blogspot.com
1

William's Way: July 2015

http://sweetwilliamsway.blogspot.com/2015_07_01_archive.html

Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Wednesday, July 29, 2015. Pittsburgh, Take III. Journey to Pittsburgh, TAKE III. He giggled in his sleep! Something was THAT funny that he laughed while dreaming! It took me by such surprise I just watched the monitor hoping that the dream would cycle back and make him smile, but the next stage of sleep had been obtained. When was the last time you heard something that made you smile? MONDAY 08/17 &#...

2

William's Way: newborn screen

http://sweetwilliamsway.blogspot.com/2015/08/newborn-screen.html

Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Saturday, August 8, 2015. NO state includes all 56 recommended potentially fatal, but treatable, diseases in its Newborn Screening Program. Not one. Not your state. NOT ONE. IT IS PREVENTABLE. William could've been saved. Hundreds of babies COULD'VE been saved. Friends and family,. For my friends and family members that have had a baby, do you know exactly what your baby was tested for? Please help m...

3

William's Way: May 2015

http://sweetwilliamsway.blogspot.com/2015_05_01_archive.html

Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Wednesday, May 20, 2015. Want to go home! Post transplant day one hundred something. Lost count. 😊 William joins Daddy and Mommy at a night out to eat, blows some bubbles and enjoys the nice weather. One day closer to getting the heck out of Pittsburgh! We are well.and bored! Thursday, May 7, 2015. I want to go home! Giving up is NOT an option. Take care of one another. Video of William's BMT Doctor.

4

William's Way: Pittsburgh, Take III

http://sweetwilliamsway.blogspot.com/2015/07/pittsburgh-take-iii.html

Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Wednesday, July 29, 2015. Pittsburgh, Take III. Journey to Pittsburgh, TAKE III. He giggled in his sleep! Something was THAT funny that he laughed while dreaming! It took me by such surprise I just watched the monitor hoping that the dream would cycle back and make him smile, but the next stage of sleep had been obtained. When was the last time you heard something that made you smile? MONDAY 08/17 &#...

5

William's Way: April 2015

http://sweetwilliamsway.blogspot.com/2015_04_01_archive.html

Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Saturday, April 25, 2015. Burlington folks - give blood in honor of William! Post transplant day 93. Past due update on William:. Otherwise, things have been going pretty well. William is up to a hefty 9 kg now (almost 20 lbs); he came here at a tiny 14 lbs. His weight has to be closely monitored due to his disease - they want him around the 10th percentile, but have you seen my husband or me? Willia...

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Sweet William's Way by Katie Boney - GoFundMe

https://www.gofundme.com/sweetwilliamsway

Raise money for any cause. Try searching for locations, campaign titles and names. For the latest updates from Abbey's blog. William's story below was taken from a blog written by Abbey, William's Mom. Thank you for all of your help,. No medicines, no doctors, just happened. This was the first time I truly understood that God was in control. He is ALWAYS in control. He just can't move very well, but he still coos at me, smiles at strangers, laughs, and gets irritated at me when I won't stop giving him ki...

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William's Way

Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease. Saturday, August 8, 2015. NO state includes all 56 recommended potentially fatal, but treatable, diseases in its Newborn Screening Program. Not one. Not your state. NOT ONE. IT IS PREVENTABLE. William could've been saved. Hundreds of babies COULD'VE been saved. Friends and family,. For my friends and family members that have had a baby, do you know exactly what your baby was tested for? Please help m...

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Monday, August 10, 2015. Last August 5th in the Blogosphere it was NOMS day.Not of My Species Day Friend. I learned that at my Friends FurEver. Well since the Canine Influenza is still hitting us hard in Nati City and I am still staying at home because I just got my first shot last week I get the second shot two weeks from now I thought I would show you my NOMS Friend. She is one of six chicken and her owner has a German Shepard. Why did the chicken cross the fence? Now cats can be NOMS Friends sometimes.

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