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LIFE'S UNEXPECTED TURN: October 2011
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Monday, October 31, 2011. Transplant - Long story short. On Sep 9, Friday I got a call around 9.30AM, it was from Dr. E. My heart started racing. She said we have a perfect liver for Mahiya. She asked how do you feel? Doctors who attended her code came and talked. With us, they felt like it was very quick so any damage that was caused should be reversible. And her brain should be fine. That evening the surgeon examined her abdomen and she open her eyes and looked at him, which he said it is a ver...We ar...
mahiyaucd.blogspot.com
LIFE'S UNEXPECTED TURN: January 2012
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Tuesday, January 24, 2012. It was such a great statement. We don't know our destination, but will keep moving with hope and try our best to keep her happy. When we bring up any issues with Mahiya to the doctors, they say "she is very complex it is not easy to tell anything or pinpoint a reason". We don't know what to do sometimes.Wish there was a specialist who is an expert in all fields. Mahiya's progress has been really slow. Patience is a virtue. Hope our patience will be rewarded. Welcome to this blog.
mahiyaucd.blogspot.com
LIFE'S UNEXPECTED TURN: February 2012
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Saturday, February 18, 2012. After coming home, we have been giving her little taste of food that she loved before her code it seemed like she was liking it. Last week we had another evaluation and the ST gave her half a baby spoon of apple sauce. She opened her mouth and bit on the spoon and won't let go. Again the ST started "she still has the tonic bite". NOT AGAIN! Mahiya has not had much solids even before her code, so she it is new to her. Hope she starts eating solids and likes it.
dayafterday-rturri.blogspot.com
Day After Day...: Three Days Of Spring - And A Few Indians
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Sunday, May 20, 2012. Three Days Of Spring - And A Few Indians. I have been hearing stories of miracles, and amazing events that happen all. Around us. Wonderful gifts. I am told that all I have to do is open my eyes and. Look - and there they are! Or, open my heart to them - and they will be mine! Well, I don't doubt that at all. But I would wish for a miracle, or an amazing. Event, a little closer to myself, and within my own life. I not only left the ground, I left my body. I left the Earth. I...Weigh...
mahiyaucd.blogspot.com
LIFE'S UNEXPECTED TURN: April 2012
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Friday, April 20, 2012. After passing swallow study, she is taking some formula orally. She takes 40 to 50 mls in a day. She is still getting most of her feed through J-tube. Hopefully some day we could go with just G-tube for her feeds and meds. Subscribe to: Posts (Atom). Welcome to this blog. A wife and full-time mom of 2 wonderful girls.I strive hard to be the best mom that I can be for my little ones. View my complete profile. First day of Second Grade. Condemned to Die: Ask me how. Tell me why.
mahiyaucd.blogspot.com
LIFE'S UNEXPECTED TURN: August 2011
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Friday, August 26, 2011. 4 days at home, is it too much already? Monday, August 22, 2011. We pray for Mahiya's stability until a liver becomes available. It is killing us to pray for a faster availability as it has to be a deceased donor. We just pray for Mahiya's stability. Mithilya is starting her Kindergarten this fall Sep 7,2011. She is very excited. We are excited too, want her to get out and have a normal life, but still we are scared of all the germs that she is going to bring home. Aug 10, 2011: ...
mahiyaucd.blogspot.com
LIFE'S UNEXPECTED TURN: Passed Swallow study!!
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Saturday, March 3, 2012. Mahiya had a swallow study done yesterday. And she passed it. hurrah! Thanks everyone for your continued support! Subscribe to: Post Comments (Atom). Welcome to this blog. This blog documents our day to day management of Mahiya's Urea Cycle Disorder. All contents provided on this site is for personal documentation purpose only. Any information on this site or found following any link on this site should not be taken as medical advise. View my complete profile.
mahiyaucd.blogspot.com
LIFE'S UNEXPECTED TURN: June 5, 2012
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Thursday, May 31, 2012. June 5, 2012. PT at the U of M is going well. She will be upset but still the PT keeps doing and after sometimes she gives up and starts cooperating. She is doing stander these days. It is not easy, she has to be rocked in the stander all for just 10 minutes of standing. 10 minutes in the stander is the best we could get out of her. Hope she improves. This week is Mithilya last week of Kindergarten and it is going to get hectic for me starting next week. Welcome to this blog.
mahiyaucd.blogspot.com
LIFE'S UNEXPECTED TURN: December 2011
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Friday, December 2, 2011. First month at home - Post cardiac arrest. Its just one little word, but sometimes it means everything. I felt like that this phrase was just the right one in our situation. We will hang on to HOPE. Thanks everyone for your continued support! Subscribe to: Posts (Atom). Welcome to this blog. A wife and full-time mom of 2 wonderful girls.I strive hard to be the best mom that I can be for my little ones. View my complete profile. First month at home - Post cardiac arrest.
mahiyaucd.blogspot.com
LIFE'S UNEXPECTED TURN: September 2011
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Monday, September 5, 2011. We have totally lost confidence in us catching Mahiya's ammonia early. Every time we go for a clinical visit thinking she is fine, but her ammonia would be above 100. So these days we rush to ER even if she gets a little fuzzy. Subscribe to: Posts (Atom). Welcome to this blog. A wife and full-time mom of 2 wonderful girls.I strive hard to be the best mom that I can be for my little ones. View my complete profile. First day of Second Grade. Left For Dead - No CPR.