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Sienna's Flower Garden | FOP Disease | Muscle to Bone Disease

Plant a flower in Sienna's Garden. Help us find a cure for Sienna and others that suffer from the debilitating genetic disease F.O.P.

http://www.siennasflowergarden.com/

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Sienna's Flower Garden | FOP Disease | Muscle to Bone Disease | siennasflowergarden.com Reviews
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Plant a flower in Sienna's Garden. Help us find a cure for Sienna and others that suffer from the debilitating genetic disease F.O.P.
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Sienna's Flower Garden | FOP Disease | Muscle to Bone Disease | siennasflowergarden.com Reviews

https://siennasflowergarden.com

Plant a flower in Sienna's Garden. Help us find a cure for Sienna and others that suffer from the debilitating genetic disease F.O.P.

LINKS TO THIS WEBSITE

thesiennafoundation.org thesiennafoundation.org

Donate

http://www.thesiennafoundation.org/donate

The Big Toe Knows! Path to a Cure. YOUR DONATION IS CRITICAL. Of the entire FOP research budget is provided by family and friends of FOP patients. You can do to eradicate FOP and preserve Sienna’s bright future is donate to support FOP research through Sienna’s Flower Garden on behalf of the IFOPA*. The IFOPA is a registered 501(c)(3) charitable organization. CLICK HERE to donate for Sienna via Sienna’s Flower Garden*. Click Sienna’s Piggy Bank to Donate via Sienna’s Flower Garden *. Additionally, it mig...

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datingaffiliateprogram: December 2012

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Monday, December 31, 2012. The Same Page Copout. Spinster: “So…when am I gonna see you again? Boy: “Uh….I kind of thought we were on the same page.”. Spinster: “And what page is that? Boy: “That when I went back to school that we both kind of just did our own thing.”. There is an alarming trend of boys “assuming” with their frightful little “pages”. Hey-we’ve got nothing against pages. We love to read. But sometimes we like to use our mouths and words to communicate. Getting paper cuts,. He grinned and s...

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My MisAdventures in Dating: Help Sienna Fill The World With Beauty

http://lindseysmisadventuresindating.blogspot.com/2012/12/help-sienna-fill-world-with-beauty.html

My MisAdventures in Dating. A formerly married, long-term relationship gal is now a free bird recently released back into the jungle that is NYC's dating scene. In her 30's. Life just got REAL interesting. Wednesday, December 12, 2012. Help Sienna Fill The World With Beauty. I will get back to hemming and hawing about my own non-important drivel soon, but today I implore to you read about, and if you can, help Sienna. After all, 'tis the season. January 12, 2013 at 8:49 AM. The thing is really cool here.

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This Speech Was Banned | Rare Mom

https://raremom.com/2014/09/10/this-speech-was-banned

Sienna’s Flower Garden. September 10, 2014. This Speech Was Banned. I used to be afraid to speak in public. I was set to give a new speech this Friday. It was a new challenge and one I have never taken on before: speaking to Sienna’s class of 4-year-olds about Sienna and FOP. For the first time in a long time, I was a little nervous about a speech. What would it be like to speak to a room full of 4-year-olds? Would they sit still? Would someone get my joke and volunteer that they have X-ray vision? There...

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FasterCures Blog: 4/1/13 - 5/1/13

http://fastercures.blogspot.com/2013_04_01_archive.html

Tuesday, April 23, 2013. The FasterCures blog has moved to tumblr. Follow us! Links to this post. Friday, April 19, 2013. One woman’s fight to find cures for neuroendocrine cancer. Time=Lives Story of the Week: Catherine Cooling Davis. Catherine Cooling Davis is 28, newly married, getting her MBA, and living with metastatic neuroendocrine cancer. But, she’s not letting this life-threatening diagnosis stop her from being her own best advocate in the face of uncertainty. I don't know how fast it is growing...

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New Year’s | bertandduke

https://bertandduke.com/tag/new-years

Little. Not yellow. Different. Skip to primary content. Skip to secondary content. Tag Archives: New Year’s. December 19, 2015. Once again, we got out our satiny caftan loungers, wig collection, and squid hat, and shot our annual holiday card. The photo shoot involves a lot of yelling by Mama and Dada about staying on our marks (whatever that means), looking “over here,” and smiling, so much smiling. You try smiling while someone maniacally yells, “Smile! Here’s the back of the card:. 8211; Bert and Duke.

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My MisAdventures in Dating: December 2012

http://lindseysmisadventuresindating.blogspot.com/2012_12_01_archive.html

My MisAdventures in Dating. A formerly married, long-term relationship gal is now a free bird recently released back into the jungle that is NYC's dating scene. In her 30's. Life just got REAL interesting. Wednesday, December 12, 2012. Help Sienna Fill The World With Beauty. I will get back to hemming and hawing about my own non-important drivel soon, but today I implore to you read about, and if you can, help Sienna. After all, 'tis the season. Wednesday, December 5, 2012. Greetings From The See-Saw.

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Ask Hazy show | bertandduke

https://bertandduke.com/tag/ask-hazy-show

Little. Not yellow. Different. Skip to primary content. Skip to secondary content. Tag Archives: Ask Hazy show. What Is Love (Baby Don’t Hurt Me). March 7, 2016. Aka, Ask Hazy, Season 2, Episode 2. On today’s episode, we answer another question from fan favorite Brad R. Warning: this episode contains mature content like kissing and high fives. If you have a question for a future episode, please leave it in the comments section. Not on Facebook! Bert and Duke: 2013 The Year in Review. January 1, 2014.

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Two Years of Progress | Rare Mom

https://raremom.com/2014/05/30/two-years-of-progress

Sienna’s Flower Garden. May 30, 2014. Two Years of Progress. Today, May 30th, 2014, is Sienna’s 2-year diagnose-a-versary. As I look back, I am so proud of everything that has been accomplished in these two years: by Sienna, by us, by our friends and families, and most importantly, by the FOP researchers at Penn and around the world. I want to share a few highlights with all of you:. Sienna’s Highlights: She is a certified genius, gaining confidence and independence. Awareness and Fundraising Highlights:...

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Sienna's Flower Garden | FOP Disease | Muscle to Bone Disease

Plant a flower and help us find a cure for Sienna Otto and others who suffer from F.O.P. If we raise $1 million, we can fund a clinical trial for an effective treatment to stop. The progression of F.O.P., and continue to work towards a cure. With your help,. This may be only a few years away. Watch the video. DONATE NOW TO PLANT A FLOWER. 830,710 to go! About F.O.P. About F.O.P. Why should I donate? Where does the money go? The IFOPA is a registered 501(c)(3) charitable organization. 5 – $24. Sienna Otto...

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Coming Soon

Future home of something quite cool. If you're the site owner. To launch this site. If you are a visitor.

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SIENNA'S SUPER BLOG

The most awesome little girl in the whole wide world. Listen to your heart. Ldquo;Mama, just listen to your heart and if your heart says to go pee pee and poo poo you can just use the potty right over there”. Sienna loves naming stuff. New babydolls name: Ginger Ale 
New toy dogs name: Pixie Dust 
Flower 1’s name: flowery 
Flower 2’s name: salty. PURPLE…It’s beyond weird. Sienna: "Mama what’s happened to my butterfly balloon? Me: "it’s deflating Sienna”. What Sienna says when there is a lot of something.