The Specialised Healthcare Alliance is a broad coalition of patient groups, established in 2003 to campaign on behalf of people with rare diseases and other complex conditions which require specialised medical care.
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Specialised Healthcare Alliance: Home | shca.info Reviews
https://shca.info
The Specialised Healthcare Alliance is a broad coalition of patient groups, established in 2003 to campaign on behalf of people with rare diseases and other complex conditions which require specialised medical care.
shca.info
Specialised Healthcare Alliance: Home
http://www.shca.info/index.php
The Specialised Healthcare Alliance is a coalition of patient-related groups and corporate supporters with a strong record of campaigning on behalf of people with rare and complex conditions in need of specialised care. These services cover a wide range of conditions, many of which could affect any one of us at some point in our lives. The Alliance focuses exclusively on overarching policies and structures relating to specialised care and does not address individual therapeutic issues.
Specialised Healthcare Alliance: Specialised Commisioning
http://www.shca.info/specialised_commisioning.php
Under the Health and Social Care Act 2012, the commissioning of specialised services is the direct responsibility of NHS. England. This is in contrast to the majority of mainstream healthcare, which is commissioned locally by Clinical Commissioning Groups. In commissioning specialised services, NHS. England is supported by over 70 Clinical Reference Groups ( CRG. S) combining clinical expertise with patient and public representation. The CRG. England will or won’t routinely fund.
Specialised Healthcare Alliance: Members
http://www.shca.info/members.php
Vice Chairs: Baroness Redfern and Lord Sharkey. AHUSUK – atypical Haemolytic Uraemic Syndrome. 8211; the Association for Multiple Endocrine Neoplasia Disorders. 8211; Arthritis and Musculoskeletal Alliance. Association for Glycogen Storage Diseases. 8211; British Association for Parenteral and Enteral Nutrition. Batten Disease Family Association. 8211; Eating Disorders Association. Behcet’s Syndrome Society. 8211; premature baby charity. Bone Cancer Research Trust. British Kidney Patient Association.
Specialised Healthcare Alliance: About Us
http://www.shca.info/about_the_shca.php
1 in 17 people will be affected by a rare or complex condition at some point in their lives. We believe the quality and availability of specialised services is fundamental to a properly functioning National Health Service and a key criterion by which the NHS. The transfer of responsibility for specialised commissioning to NHS. Has no political affiliation and seeks to work across party lines. We are proud to have been chaired by Baroness Wheeler since 2014. Baroness Wheeler has a strong record of...Lord ...
Specialised Healthcare Alliance: News
http://www.shca.info/blog/blog.php
SHCA welcomes Public Accounts Committee recommendations for NHS specialised services. Today welcomes the publication of the House of Commons Public Accounts Committeeâ s report on NHS. Following a recent evidence session and National Audit Office report on the issue. To a significant extent, the report reflects the views of the Alliance and its members, as expressed through submissions to the inquiry. The Committee sets out areas of significant concern, including NHS. 1 As a matter of urgency, NHS. Engla...
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PID UK - Advocacy
http://www.piduk.org/advocacy
Resources for patients, carers and professionals. Useful contacts and links. Support for IPOPI position statements. Advocacy is about influencing people, policies, practices, structures and systems in order to bring about change. Support for IPOPI position statements. Email this to a friend. It is free to join PID UK and receive regular updates on our activities. Find out how you can help PID UK to raise vital funds. Member of Specialised Healthcare Alliance. National member of IPOPI.
PID UK - Accessibility
http://www.piduk.org/accessibility.aspx
Resources for patients, carers and professionals. Useful contacts and links. PID Society website has been designed to be accessible to all. As a charity, we strive to show the same lack of discrimination that disease and disability do. Therefore we have created our website using standards-compliant XHTML and CSS coding, striving to meet the ‘AA’ access standards laid out by the World Wide Web Consortium (W3C). ‘AA’ standards are those recommended by the RNIB. Email this to a friend. It is free to join PI...
PID UK - Make a donation to PID UK
http://www.piduk.org/donate
Resources for patients, carers and professionals. Useful contacts and links. Make a donation online. Make a regular donation. Make a donation to PID UK. There are several ways you can make a donation to PID UK. If you have any questions about your donation, please call us on 0800 987 8986. From every 1 that you donate, 85p will go directly to PID UK and 15p will cover overheads at Genetic Disorders UK, the charity that manages and runs PID UK. Make a donation online. Send a donation by post.
Past Info & Support Days
http://pkdcharity.org.uk/support/pkd-information-support-days/past-info-support-days
Fast facts about ADPKD. I want to know more. How did I get ADPKD. How is ADPKD diagnosed. How are cysts formed. Blood in the urine. Talking to children and young people about ADPKD. A Guide for Parents. Information and Support Days. ADPKD Info and Support Days. ARPKD Family Support Days. Past Info and Support Days. Online Groups and Social Media. PKD Telephone Befriending and Peer Support. Leave Us a Gift in Your Will. Fundraise via Our Partners. DIY Fundraising and Tips. Gift Aid on Donations. ARPKD Fam...
PKD Information & Support Days
http://pkdcharity.org.uk/support/pkd-information-support-days
Fast facts about ADPKD. I want to know more. How did I get ADPKD. How is ADPKD diagnosed. How are cysts formed. Blood in the urine. Talking to children and young people about ADPKD. A Guide for Parents. Information and Support Days. ADPKD Info and Support Days. ARPKD Family Support Days. Past Info and Support Days. Online Groups and Social Media. PKD Telephone Befriending and Peer Support. Leave Us a Gift in Your Will. Fundraise via Our Partners. DIY Fundraising and Tips. Gift Aid on Donations. PKD Telep...
Online Groups & Social Media
http://pkdcharity.org.uk/support/pkd-social-media-online-communities
Fast facts about ADPKD. I want to know more. How did I get ADPKD. How is ADPKD diagnosed. How are cysts formed. Blood in the urine. Talking to children and young people about ADPKD. A Guide for Parents. Information and Support Days. ADPKD Info and Support Days. ARPKD Family Support Days. Past Info and Support Days. Online Groups and Social Media. PKD Telephone Befriending and Peer Support. Leave Us a Gift in Your Will. Fundraise via Our Partners. DIY Fundraising and Tips. Gift Aid on Donations. Renal Pat...
Support
http://pkdcharity.org.uk/support
Fast facts about ADPKD. I want to know more. How did I get ADPKD. How is ADPKD diagnosed. How are cysts formed. Blood in the urine. Talking to children and young people about ADPKD. A Guide for Parents. Information and Support Days. ADPKD Info and Support Days. ARPKD Family Support Days. Past Info and Support Days. Online Groups and Social Media. PKD Telephone Befriending and Peer Support. Leave Us a Gift in Your Will. Fundraise via Our Partners. DIY Fundraising and Tips. Gift Aid on Donations. Turks and...
Benefits
http://pkdcharity.org.uk/support/benefits
Fast facts about ADPKD. I want to know more. How did I get ADPKD. How is ADPKD diagnosed. How are cysts formed. Blood in the urine. Talking to children and young people about ADPKD. A Guide for Parents. Information and Support Days. ADPKD Info and Support Days. ARPKD Family Support Days. Past Info and Support Days. Online Groups and Social Media. PKD Telephone Befriending and Peer Support. Leave Us a Gift in Your Will. Fundraise via Our Partners. DIY Fundraising and Tips. Gift Aid on Donations. Onclick="...
Gift Aid on Donations
http://pkdcharity.org.uk/fundraising/gift-aid
Fast facts about ADPKD. I want to know more. How did I get ADPKD. How is ADPKD diagnosed. How are cysts formed. Blood in the urine. Talking to children and young people about ADPKD. A Guide for Parents. Information and Support Days. ADPKD Info and Support Days. ARPKD Family Support Days. Past Info and Support Days. Online Groups and Social Media. PKD Telephone Befriending and Peer Support. Leave Us a Gift in Your Will. Fundraise via Our Partners. DIY Fundraising and Tips. Gift Aid on Donations. If you pa...
Support Groups
http://pkdcharity.org.uk/support/pkd-support-groups
Fast facts about ADPKD. I want to know more. How did I get ADPKD. How is ADPKD diagnosed. How are cysts formed. Blood in the urine. Talking to children and young people about ADPKD. A Guide for Parents. Information and Support Days. ADPKD Info and Support Days. ARPKD Family Support Days. Past Info and Support Days. Online Groups and Social Media. PKD Telephone Befriending and Peer Support. Leave Us a Gift in Your Will. Fundraise via Our Partners. DIY Fundraising and Tips. Gift Aid on Donations. Saint Vin...
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Specialised Healthcare Alliance: Home
The Specialised Healthcare Alliance is a coalition of patient-related groups and corporate members with a strong record of campaigning on behalf of people with rare and complex conditions in need of specialised care. These services cover a wide range of conditions, many of which could affect any one of us at some point in our lives. The Alliance focuses exclusively on overarching policies and structures relating to specialised care and does not address individual therapeutic issues.
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