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Reporting. Collaborating. Advancing. Helping to improve the quality of care for patients with the rare diseases Gaucher, Fabry, MPS I and Pompe with over 650 investigators and 13,500 patients and counting! Researching Lysosomal Storage Disorders. A disease registry can help improve disease understanding by enabling physicians to:. Contribute and share data. By contributing their data to aggregate analyses to help understand progression of the disease and ultimately improve patient care. Genesis N of 1.

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Reporting. Collaborating. Advancing. Helping to improve the quality of care for patients with the rare diseases Gaucher, Fabry, MPS I and Pompe with over 650 investigators and 13,500 patients and counting! Researching Lysosomal Storage Disorders. A disease registry can help improve disease understanding by enabling physicians to:. Contribute and share data. By contributing their data to aggregate analyses to help understand progression of the disease and ultimately improve patient care. Genesis N of 1.

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RegistryNXT - Home | registrynxt.com Reviews

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Reporting. Collaborating. Advancing. Helping to improve the quality of care for patients with the rare diseases Gaucher, Fabry, MPS I and Pompe with over 650 investigators and 13,500 patients and counting! Researching Lysosomal Storage Disorders. A disease registry can help improve disease understanding by enabling physicians to:. Contribute and share data. By contributing their data to aggregate analyses to help understand progression of the disease and ultimately improve patient care. Genesis N of 1.

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registrynxt.com

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Retrieve your Account Information. An email address is required to retrieve your username. Please enter your email address below. Email Address' must not be blank. Your email address has been validated, please provide an answer to your security question(s). Your username will be sent to you. Note: Security answers are case-sensitive. Security Answer' must not be blank. Security Answer' must not be blank. Security Answer' must not be blank. Use the form below to change the password for your account.

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Retrieve your Account Information. A username is required to retrieve your password. Please enter your username below. User Name' must not be blank. Your username has been validated, please provide an answer to your security question(s). Note: Security answers are case-sensitive. Security Answer' must not be blank. Security Answer' must not be blank. Security Answer' must not be blank. Use the form below to change the password for your account. Use the new password next time you log in.

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For Patients and Families

https://www.registrynxt.com/Home/For-Patients-and-Families

For Patients and Families. For Patients and Families. For Patients and Families. What is a disease registry? A disease registry contains medical information in a database on patients with a specific condition that can be analyzed and used by physicians treating patients with the same condition. Registries have proven to be especially valuable in rare diseases. Today, the Registries include more than 13,500 patients and are open to all patients worldwide, irrespective of treatment status. Sanofi Genzyme m...

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For Current Health Care Professionals

https://www.registrynxt.com/Home/For-Healthcare-Professionals

For Health Care Professionals. For Patients and Families. Why participate in the Sanofi Genzyme Rare Disease Registries? Any health care provider who is managing patients with Gaucher, Fabry, MPS I and Pompe disease may participate in the Sanofi Genzyme Rare Disease Registries regardless if patients are on treatment or not. How do I register for a RegistryNXT! Accounts only. If you already have an account, please contact the RegistryNXT! Operated and hosted by Digital Infuzion, Inc.

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RegistryNXT - Home

https://www.registrynxt.com/fabry/Pages/Home.aspx

Reporting. Collaborating. Advancing. Helping to improve the quality of care for patients with rare diseases such as Gaucher, Fabry, MPS I and Pompe with over 650 investigators and 13,500 patients and counting! Researching Lysosomal Storage Disorders. A disease registry can help improve disease understanding by enabling physicians to:. Contribute and share data. By understanding the variations in disease for each patient and assessing their progress compared to other patients through aggregate reporting.

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Reporting. Collaborating. Advancing. Helping to improve the quality of care for patients with the rare diseases Gaucher, Fabry, MPS I and Pompe with over 650 investigators and 13,500 patients and counting! Researching Lysosomal Storage Disorders. A disease registry can help improve disease understanding by enabling physicians to:. Contribute and share data. By contributing their data to aggregate analyses to help understand progression of the disease and ultimately improve patient care. Genesis N of 1.

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