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RARE - Home

a new feature documentary, follows an extraordinary mother in a race against time, as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease.

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RARE - Home | rarefilm.org Reviews
<META>
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a new feature documentary, follows an extraordinary mother in a race against time, as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease.
<META>
KEYWORDS
1 Maren Grainger Monson
2 Nicole Newnham
3 RARE film
4 Rare
5 Rare documentary
6 RARE documentary film
7 Donna Appell
8 Ashley Appell
9 Dr. William Gahl
10 Hermansky-Pudlak Syndrome
CONTENT
Page content here
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PAGE
filmmakers,news,screenings and broadcast,learn more,buy now,event details here,winner,stanford center for,biomedical ethics,support the,hps community,hermansky pudlak syndrome,2012 helianthus media
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RARE - Home | rarefilm.org Reviews

https://rarefilm.org

a new feature documentary, follows an extraordinary mother in a race against time, as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease.

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data2insight | Measuring the difference a film can make

http://data2insight.com/project/rare

Measuring the difference a film can make. Strategic measurement of a clinical & translational science institute. Powerful measurement for powerful schools. Howard University evaluation & tracking group. Measuring high school student knowledge gains and attitudes about research. Technical assistance for Rethinking Pre-College Math program. Facilitation and Training, Strategic Evaluation. Powering elementary school math programs. Facilitation and Training, Strategic Evaluation. The Northwest Association fo...

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MLD Foundation Blog - Page 2 of 4 - Musings about MLD and rare disease policyMLD Foundation Blog | Musings about MLD and rare disease policy | Page 2

http://blog.mldfoundation.org/page/2

Musings about MLD and rare disease policy. Skip to primary content. Skip to secondary content. List of RARE Diseases. Newer posts →. Wanita … How a younger sister sees MLD. January 12, 2016. My name is Tarryn and my older sister Wanita was diagnosed with MLD in 2007. She was 16 and I was 14 when she passed away and passed in 2010 from juvenile MLD. I live in South Africa. I love you Wita. New Year’s Reflections … and Highlights from December Meeting in Boston. No more lives torn apart,. This is my grown-...

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RARE RECEIVES STANDING OVATION AT ACRP. RARE screened in San Antonio at the Association of Clinical Research Professional Conference on April 27th, 2014. The film and Donna and Ashley, who are featured in the film, received a standing ovation after the screening. LONG ISLAND FILM FESTIVAL. RARE won the Special Jury Award at the Long Island Film Festival. We are delighted to receive this honor from the home city where this story was filmed. Program in Bioethics and Film. Subscribe to our mailing list.

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