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Home - Rare Disease Foundation

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Rare disease matters

Recognizing and understanding the value of patient-driven innovation. Why Rare disease matters. Patient-initiated research foundations: A source of funding, but more importantly a continuous source of inspiration. Closing a gap for rare diseases or simply a bridge too far. Dog head transplant by Demichow (1959). Attribution: Bundesarchiv, Bild 183-61478-0004 / Weiß, Günter / CC-BY-SA. To quote the famous 1997 Apple Think different Ad. Does this mean he is right and should advance with his venture? This w...

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rarediseasenetwork.com

Ce nom de domaine n'est pas disponible. Il a été enregistré via gandi.net. More information about the owner. Enregistrer votre nom de domaine. Chez Gandi, vous avez le choix sur plus d'une centaine d'extensions et vous bénéficiez de tous les services inclus (mail, redirection, ssl.). Rechercher un nom de domaine. Votre site dans le cloud? Découvrez Simple Hosting, notre cloud en mode PaaS à partir de 4 HT par mois (-50% la première année pour les clients domaine). It is currently being parked by the owner.

rarediseaseperspectives.com rarediseaseperspectives.com

Patient centered communications consulting for any business in rare disease space

Our direct patient experience can help you connect. Partnering with patients can reduce overall costs. Patient perspectives can guide strategy. Rare Disease Perspectives is a communications consulting firm directed to foster and create communications, relationships and trust between patients, patient advocacy groups and the industries involved with them. LISTEN TO LIVE TO LEARN. As such we at the BioPontis Alliance Rare Disease Foundation.

rarediseaseplatform.org rarediseaseplatform.org

Plateforme Maladies Rares - Home

Since 2001, the Rare Disease Platform is a place that brings together over a hundred employees and many volunteers, mobilised to advance the fight against rare diseases and to improve the lives of patients and their families. Institut des maladies rares. Maladies Rares Info Services.

rarediseaseportal.com rarediseaseportal.com

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