ourhlhsjourney.blogspot.com

Our HLHS Journey

Tuesday, July 25, 2017. Cardio visit this year was June 30th and this mama is a month behind on the update. There we briefly saw our Fontan buddy Eli, but because of patient privacy, etc, we could not talk only in the waiting room but then we were whisked away and didn't get to talk much. Eli is doing awesome as well. After our appointment we went as usual to Target, to reward Jasiu for all of his cooperation, of course Pokémon was the reward, because God only knows we don't need any more Lego's. We have...

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Our HLHS Journey | ourhlhsjourney.blogspot.com Reviews

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Tuesday, July 25, 2017. Cardio visit this year was June 30th and this mama is a month behind on the update. There we briefly saw our Fontan buddy Eli, but because of patient privacy, etc, we could not talk only in the waiting room but then we were whisked away and didn't get to talk much. Eli is doing awesome as well. After our appointment we went as usual to Target, to reward Jasiu for all of his cooperation, of course Pokémon was the reward, because God only knows we don't need any more Lego's. We have...

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po polsku,heart mom poems,posted by,kathy k,no comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,goodbye kindergarten,a new outlook,just plain silly,more silliness,raising my voice,deal with,happy birthday jasiu,seven

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Our HLHS Journey | ourhlhsjourney.blogspot.com Reviews

https://ourhlhsjourney.blogspot.com

Tuesday, July 25, 2017. Cardio visit this year was June 30th and this mama is a month behind on the update. There we briefly saw our Fontan buddy Eli, but because of patient privacy, etc, we could not talk only in the waiting room but then we were whisked away and didn't get to talk much. Eli is doing awesome as well. After our appointment we went as usual to Target, to reward Jasiu for all of his cooperation, of course Pokémon was the reward, because God only knows we don't need any more Lego's. We have...

INTERNAL PAGES

ourhlhsjourney.blogspot.com

1

Our HLHS Journey: December 2014

http://ourhlhsjourney.blogspot.com/2014_12_01_archive.html

Monday, December 15, 2014. Since I didn't update for almost 6 months so here it goes. Our last compound bottle and our new pill bottle (should be smaller since there are only 15 small pills inside, seems like a waste of plastic. ). Notice the grumpy face of a kid that does not want to go to school. Heart Kid stuff - we got Jasiu's Make-A-Wish granted! Now all we need to do is pray for a great appointment so we can enjoy our trip and the New Years! A little boy who is obsessed with TMNT- Leonardo. One of ...

2

Our HLHS Journey: February 2015

http://ourhlhsjourney.blogspot.com/2015_02_01_archive.html

Wednesday, February 25, 2015. OUR MAKE -A- WISH TRIP WAS AMAZING! Shortly after his 3rd surgery (April 2012) I applied to Make-a-Wish for Jasiu to see if his wish could be granted. For those that are not familiar with Make a Wish, "Make-A-Wish. Well that was an abrupt wake up call, we double teamed, Joe got the bags in the limo, (good thing they were all packed the night before) and I got the kids not so subtly woken up, dressed and out the door. When we were driving away from our home it was 5:25! So I ...

3

Our HLHS Journey: Po Polsku

http://ourhlhsjourney.blogspot.com/p/po-polsku.html

Juz po operaci Fontana! Dzien sie zaczol troche w nerwach poniewaz operacia nasza sie dosc duzo opoznila z planowanej 9:30 rano do 13:15 po poludniu. Jasiu byl glodny i troche zdenerwowany ale naprawde przechodzil wszystko tak dzielnie ze sama nie wiem jak sobie poradzil. Bajki go zajely i nie marudzil. Wcale, nawet sobie strzelil drzemke. Operacia sie powiodla dobrze, ciecie klatki piersiowej bylo. Jak Jasiu sobie spokojnie spi to ja zdecydowalan napisac jakas inrmacie. Takze przepraszam za bledy ortogr...

4

Our HLHS Journey: Semi Annual Update !

http://ourhlhsjourney.blogspot.com/2015/07/semi-annual-update.html

Friday, July 10, 2015. Last month (I started writing and never posted) we had our semiannual cardiology visit with Dr. H. With great joy, we have nothing new medically to report, which is a great way to start our summer. Dr. H has a new nurse who is really nice and I'm sure we will grow to like her as much as we did Angie. { Angie - we miss you! That is all the updates I have for now, let's have a great summer and hopefully uneventful health/cardiac wise. BRINGING IN DONATIONS FROM TEAM JASIU SHIRT SALES.

5

Our HLHS Journey: Clever as they come

http://ourhlhsjourney.blogspot.com/2015/05/clever-as-they-come.html

Friday, May 1, 2015. Clever as they come. Our big boy had his preschool screening today and boy did we have a good laugh. These are too good to forget so I'm journaling it here. He was a tad shy at first but overcame that pretty quickly and by the end he was quite sad that he couldn't stay longer and actually attend now and that he had to go home. He had no problem tracing and copying different shapes. There is a picture of a kitchen and a fork on the floor. Tester: What is this? I nearly fell of my chai...

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mom2lo.com

Just Another Day...: 01/26/15

http://www.mom2lo.com/2015_01_26_archive.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Monday, January 26, 2015. We Need YOUR Help! Friends and family, please help us reach our goal of nationally recognizing February 7-14 as Congenital Heart Defect Awareness Week! This will be a HUGE step forward in raising awareness, and awareness leads to funding, and funding leads to new and innovative TREATMENTS for Congenital Heart Defects - like Chase's half a heart. Please click here to sign the petition! Links to this post. It's ...

mom2lo.com

Just Another Day...: 10/24/14

http://www.mom2lo.com/2014_10_24_archive.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Friday, October 24, 2014. A Time to Reflect. Is anyone out there? It's been over 2 months since my last post. Obviously homeschooling is a crazy full-time endeavor because I haven had a spare second to myself these past few months - much less any free time to blog! I'll give a major update soon (spoiler alert: things are great! Can you believe that? More to come soon, I promise. October 24, 2009. Chase will be here on MONDAY. Childrens...

mom2lo.com

Just Another Day...: Summer Catch Up: Beach Edition

http://www.mom2lo.com/2015/08/summer-catch-up-beach-edition.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Tuesday, August 11, 2015. Summer Catch Up: Beach Edition. We hit the beach in June for a little family day trip and it was a lot of fun! There's no commentary here - just some adorable pics of my big kids! Subscribe to: Post Comments (Atom). What I'm Up To. I'm a Blessed Heart Mom! Summer Catch Up: Beach Edition Part II. Summer Catch Up: Beach Edition. Hope for Baby Bennett. Where did my friend go? ACFW Pre-Conference Mix and Mingle.

mom2lo.com

Just Another Day...: Summer Catch Up: Beach Edition Part II

http://www.mom2lo.com/2015/08/summer-catch-up-beach-edition-part-ii.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Tuesday, August 11, 2015. Summer Catch Up: Beach Edition Part II. In addition to our beach day trip back in June, we recently spent a few days at Myrtle Beach at the end of July. Here are some pics of the kids enjoying the beach as well as the hotel's waterpark. And lots of ice cream, of course. ;). Yes, she was glaring at me. No, I didn't adjust the shadow in iPhoto before posting. #tiredandlazy. What a rare sight! He's buried, too!

mom2lo.com

Just Another Day...: 10/30/14

http://www.mom2lo.com/2014_10_30_archive.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Thursday, October 30, 2014. An Epic Post: Chase's 5th Birthday Party! Well, he did it! Chase turned FIVE YEARS OLD on Sunday! This was a day I could literally only hope, dream and pray for ever since we first heard that our son would be born with HALF A HEART. I thank God every single day that He's chosen to give us Chase and I pray that we have a lifetime to watch him grow into the man God created him to be. Those who have been should...

mom2lo.com

Just Another Day...: LO's 8th Birthday!

http://www.mom2lo.com/2015/08/los-8th-birthday.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Tuesday, August 11, 2015. This year, I let LO be in charge of planning her own birthday party! It was such a relief for me to not carry that entire burden myself. ;) She was pretty excited about it and put together a pretty great party! Of course the day started with birthday pancakes! The Rainbow Dash My Little Pony pillow she wanted me to make for her. I think she was pretty happy with how it turned out! Make a wish, sweet baby girl!

mom2lo.com

Just Another Day...: The Story of Chase's Special Heart

http://www.mom2lo.com/p/my-letter-to-new-heart-moms.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. The Story of Chase's Special Heart. Our world was turned upside down on June 16, 2009. We spent days/weeks online trying to learn everything we possibly could about this diagnosis - the statistics, the life expectancy, the journey - anything I could find I would read, analyze and discuss with hubs. The statistics (all of which were outdated, thankfully! Were not good. At all. We were scared. And felt more alone than ever. Exactly 4 wee...

sammyhlhs.blogspot.com

Samuel HLHS angel: Happy 6 months in heaven Caleb

http://sammyhlhs.blogspot.com/2011/03/happy-6-months-in-heaven-caleb.html

This is my journey With my Angel Samuel Louis, who lived 9 precious days with HLHS. He earned his wings 1/20/2011. This is my life without my baby boy as i heal and continue growing. Sunday, March 27, 2011. Happy 6 months in heaven Caleb. An Angel in the book of life wrote down my baby's birth. And whispered as she closed the book "too beautiful for earth.". Subscribe to: Post Comments (Atom). This is my life. View my complete profile. Happy 6 months in heaven Caleb. And it all seems like yesterday.

mom2lo.com

Just Another Day...: 10/31/14

http://www.mom2lo.com/2014_10_31_archive.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Friday, October 31, 2014. We had a blast tonight taking the kids trick-or-treating around the neighborhood! The kids looked great in their costumes and really seemed to love transforming into Mario and Fluffy the cat, although E didn't seem terribly excited to be Luigi, but whatevs! I took a ton of pictures (waaaaaaay more than necessary, of course), but I couldn't help it! Ohmygoodness. I could just die! And 2012, too! What I'm Up To.

mom2lo.com

Just Another Day...: 12/04/14

http://www.mom2lo.com/2014_12_04_archive.html

The Story of Chase's Special Heart. HLHS Journey A Dad's Perspective. Thursday, December 4, 2014. A HUGE Announcement. #MAW4Chase! NOTE: Chase doesn't know ANYTHING about ANY of this except that something AWESOME will be happening next Friday. So please help us out by not mentioning anything to him or his siblings. :). We are completely thrilled, humbled, grateful, excited and honored to announce that our amazing heart warrior, who you may recall was approved to receive a wish from Make-A-Wish. Beginning...

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Sunday, May 18, 2014. A year ago is when our lives changed forever. I remember driving home from my parents house the evening of Mother's Day last year and telling Jeff about a friend of mine who was going through a very difficult trial with her children. We were so grateful and happy that we were expecting a baby boy in a few months. I waited all day for a phone call from my doctor. . Nothing. And from then on our lives would never be the same. Sunday, March 30, 2014. Friday, March 28, 2014. I'm sure yo...

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Our HLHS Journey

Tuesday, July 25, 2017. Cardio visit this year was June 30th and this mama is a month behind on the update. There we briefly saw our Fontan buddy Eli, but because of patient privacy, etc, we could not talk only in the waiting room but then we were whisked away and didn't get to talk much. Eli is doing awesome as well. After our appointment we went as usual to Target, to reward Jasiu for all of his cooperation, of course Pokémon was the reward, because God only knows we don't need any more Lego's. We have...

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