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Mowat-Wilson Syndrome Foundation Mission

https://mowat-wilson.org/june-conf-2014.html

Registration: Will open January 2017. 2017 INTERNATIONAL FAMILY CONFERENCE. June 29 - July 1st, 2017 - Washington D.C. Location/Hotel: The conference will be held at the Crystal Gateway Marriott Hotel in Arlington, VA. Rooms will be blocked for the families at a discounted rate. We will let you know when reservations open. Registration: Will open January 2017. ATLANTA FAMILY POOL PARTY and BBQ. August 20, 2016 - Atlanta, GA. 1:00 pm - 6:00 pm. Location: Al and Susan Triunfos place. Click here to register.

2

Mowat-Wilson Syndrome Foundation Home

https://mowat-wilson.org/index.html

What is Mowat-Wilson Syndrome? Mowat-Wilson Syndrome is a cognitive impairment syndrome associated with multiple health defects caused by a genetic mutation or deletion on the ZEB2 gene. Major signs of this rare genetic disorder include distinctive facial features, intellectual disability, delayed development, intestinal disorders, seizures, congenital heart disease, Agenesis of the Corpus Callosum, male genital abnormalities (hypospadias), and major expressive language difficulty. Although many differen...

3

Mowat-Wilson Syndrome Foundation Mission

https://mowat-wilson.org/mission.html

The mission of The Mowat-Wilson Syndrome Foundation is to enhance the lives of people affected by Mowat-Wilson Syndrome by providing family support, raising awareness, and supporting research and education.

4

Mowat-Wilson Syndrome Foundation Mission

https://mowat-wilson.org/what-is.html

Mowat-Wilson syndrome is a genetic condition that affects many parts of the body. Major signs of this disorder frequently include distinctive facial features, intellectual disability, delayed development, an intestinal disorder called Hirschsprung disease, and other birth defects. Source: http:/ ghr.nlm.nih.gov. Children with Mowat-Wilson Syndrome are located all over the world. Click here: http:/ tinyurl.com/pjajorw. Https:/ www.google.com/maps/d/viewer? Dr David Mowat and Meredith Wilson. Dr David Mowa...

5

Mowat-Wilson Syndrome Foundation Stories

https://mowat-wilson.org/stories.html

Our stories by LocATION. Sam, Sarah's Son - Born 1993. Edie, Sue's Daughter - Born 1984. Soetkin, Mieke and Koen's Daughter - Born 2004. Joke, Wim's Daughter - Born 2002. Kristian, Meri's Son, Born 1998. Romane, Valerie's Daughter - Born 1998. Tobias, Isabell's Son - Born 2000. Niklas, Daniel and Petra's Son - Born 2000. Timo, Malou's Son. Alex, Annette's Son - Born 2004. Alessio, Tiziana's Son - Born 1989. Gijs, Paul and Ilse's Son - Born 2001. Tess, Joost and Karen's Daughter - Born 2001. Sean, Anette ...

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MWS Links

http://www.mowatwilson.org/Mowat-Wilson%20Links.htm

Mowat-Wilson Syndrome (mowatwilson.org). Medical Info Links and Information. Early Intervention Programs by State. Genetic Testing and Searches by State and Country. Medicaid by State Search. View Mowat-Wilson Syndrome Parents Group. In a larger map. Medical Info Links and Information. The mission of The Mowat-Wilson Foundation is to enhance the lives of people affected by Mowat-Wilson Syndrome by providing family support, raising awareness, and supporting research and education. Center for Genetics Educ...

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New Diagnosis & Family Support. Connect with the Community. Register to the Genetic Registry. Submit Your Location (Map). Research & Grants. News & Events. Families in the News. Our mission is to enhance the lives of people affected by Mowat-Wilson Syndrome. A community of support for rare, special children and their families. Research. Support. Hope. 2017 CONFERENCE WORKSHOPS AVAILABLE ON YOUTUBE. The Mowat-Wilson Syndrome Patient Registry is here! Because we don’t know what’s possible! MWS IN THE NEWS.

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