holly-kfs.blogspot.com
Kickboxing for Scleroderma: November 2010
http://holly-kfs.blogspot.com/2010_11_01_archive.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Wednesday, November 24, 2010. I can hardly believe that the holiday season is upon us. When I first came home from the hospital, the days dragged by in slow succession. This past month, as I've tried (unsuccessfully) to catch up a little, it seems the days went by in a blink. My amazing tennis team, with whom I have not been able to play for over 2 years now, had a 100 days party for me! Happy Thanksgiving to all. I wish I could ...
holly-kfs.blogspot.com
Kickboxing for Scleroderma: Politics
http://holly-kfs.blogspot.com/2011/09/politics.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Monday, September 19, 2011. 8220;Politics is supposed to be the second oldest profession. I have come to realize that it bears a very close resemblance to the first.” - Ronald Reagan. The NIH is a large organization, but the research money is allocated across the nation. Much of the "bench" research in the United States is funded with NIH dollars, as is a great deal of clinical research. September 20, 2011 at 5:14 PM. That is very fa...
holly-kfs.blogspot.com
Kickboxing for Scleroderma: March 2011
http://holly-kfs.blogspot.com/2011_03_01_archive.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Thursday, March 17, 2011. Sometimes it seems like life throws you curve balls, and this has been one of those weeks. It started when I foolishly (again) left my purse in my car during Luke's tennis match down at Barnes Tennis Center. I returned to a bashed in car and a stolen purse, along with many of my other personal belongings. It's hard already, but without an income, losing all that stuff was even harder. Tuesday, March 1, 2011.
holly-kfs.blogspot.com
Kickboxing for Scleroderma: Radio, Radio
http://holly-kfs.blogspot.com/2011/08/radio-radio.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Sunday, August 14, 2011. Dr Burt was recently interviewed on air regarding the ASSIST study, and a link is provided here. For those interested. The interview once again reviews the phenomenal results this study has shows as compared to any other prior intervention with aggressive systemic scleroderma. Then it's on to Yosemite to remember the life of Steve's brother, Dale, who passed away from a brain tumor nearly 10 years ago. We...
holly-kfs.blogspot.com
Kickboxing for Scleroderma: Steady, As She Goes
http://holly-kfs.blogspot.com/2013/02/steady-as-she-goes.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Monday, February 11, 2013. Steady, As She Goes. It's been a long time since I updated my blog, but so much is happening in my life and in the world of scleroderma, that I felt it was time to share the news. Here is the most recent article. Here is the article which discusses the 19 patients in the ASSIST trial. In which I participated. I got my second set of teal streaks in my hair recently. so much fun. I'm streaking for scl...I am ...
holly-kfs.blogspot.com
Kickboxing for Scleroderma: January 2011
http://holly-kfs.blogspot.com/2011_01_01_archive.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Friday, January 21, 2011. Gearing up for Progress. or Failure. And have great aspirations and dreams of success. These were somewhat dampened at my visit with Dr. Furst this week when he cautioned me that starting a new event like this is going to take time. Expect 30 people or so, he said, and I cringed inside. All this work for 30 people? Wouldn't that feel like failure? And they start again. We could all identify with that. So I t...
holly-kfs.blogspot.com
Kickboxing for Scleroderma: August 2011
http://holly-kfs.blogspot.com/2011_08_01_archive.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Sunday, August 14, 2011. Dr Burt was recently interviewed on air regarding the ASSIST study, and a link is provided here. For those interested. The interview once again reviews the phenomenal results this study has shows as compared to any other prior intervention with aggressive systemic scleroderma. Then it's on to Yosemite to remember the life of Steve's brother, Dale, who passed away from a brain tumor nearly 10 years ago. We...
holly-kfs.blogspot.com
Kickboxing for Scleroderma: December 2010
http://holly-kfs.blogspot.com/2010_12_01_archive.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Sunday, December 26, 2010. Just a little note of gratitude for all of the wonderful people in my life. :) Best wishes for a wonderful and healthy 2011. Tuesday, December 21, 2010. Merry Christmas, My Friends! It's the most wonderful time of the year! I hope everyone is having a wonderful holiday season. I feel a great sense of renewal this year, celebrating my first Christmas with my new immune system. :). Monday, December 13, 2010.
holly-kfs.blogspot.com
Kickboxing for Scleroderma: September 2011
http://holly-kfs.blogspot.com/2011_09_01_archive.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Monday, September 19, 2011. 8220;Politics is supposed to be the second oldest profession. I have come to realize that it bears a very close resemblance to the first.” - Ronald Reagan. The NIH is a large organization, but the research money is allocated across the nation. Much of the "bench" research in the United States is funded with NIH dollars, as is a great deal of clinical research. Subscribe to: Posts (Atom).
holly-kfs.blogspot.com
Kickboxing for Scleroderma: July 2011
http://holly-kfs.blogspot.com/2011_07_01_archive.html
Holly's Blog: The musings of a physician diagnosed with a rare disease. Thursday, July 21, 2011. I am excited to report that the results of the ASSIST study are about to be published, and you fans get a sneak peak at the abstract! The Lancet, Early Online Publication, 20 July 2011doi:10.1016/S0140-6736(11)60982-3Cite or Link Using DOI. In our open-label, randomised, controlled phase 2 trial, we consecutively enrolled patients at Northwestern Memorial Hospital (Chicago, IL, USA) who were aged younger than...
SOCIAL ENGAGEMENT