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emilysfight.com

Emily's Fight

A young adult's musings on navigating life after catastrophic illness and learning to love a body with a few extra scars.

http://www.emilysfight.com/

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CONTACTS AT EMILYSFIGHT.COM

EMILY MULLER

578 O●●●●● LANE

LIND●●●●URST , IL, 60046

US

1.84●●●●8016
EM●●●●●●●@COMCAST.NET

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EMILY MULLER

578 O●●●●● LANE

LIND●●●●URST , IL, 60046

US

1.84●●●●8016
EM●●●●●●●@COMCAST.NET

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EMILY MULLER

578 O●●●●● LANE

LIND●●●●URST , IL, 60046

US

1.84●●●●8016
EM●●●●●●●@COMCAST.NET

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Emily's Fight | emilysfight.com Reviews
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A young adult's musings on navigating life after catastrophic illness and learning to love a body with a few extra scars.
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1 photography
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3 teen blogger
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5 coupons
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cure genetic illness,my story,blog,resources,donate,to donate,recent news,previous page,next page,previous,play slideshow,next,emily@emilysfight com
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Emily's Fight | emilysfight.com Reviews

https://emilysfight.com

A young adult's musings on navigating life after catastrophic illness and learning to love a body with a few extra scars.

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Emily's Fight

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Emily's Fight

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Annabelle's Challenge - Living with EDS

http://www.annabelleschallenge.org/vascular-eds/what-is-eds/living-with-eds

Surgery in Ehlers-Danlos Syndrome. Vascular EDS Your Story. Vascular EDS Conference 2017. How we can help. Vascular EDS support groups. Where your money goes. Blood, Sweat and Stupidity. Carolyn Smith Ben Nevis. Las Vegas Charity Ball. Tower and Back Bike Challenge. Manchester Electric Run 5k. Great Manchester Run 10k. Manchester Color Run 5k. London Marathon Lee Openshaw. Mill Gate Christmas Switch On. Tower FM Child Of Courage Award. Toyota Fund A Better Tomorrow. Annabelle's Challenge Charity Ball.

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The EDS Community

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If you know of a social media community that is not listed, please contact us so that we may add them to this list. New Jersey EDSers United Meet Ups and Events. Ehlers-Danlos Initiatives, Surveys, and Unified Voices: The World Speaks! Ehlers Danlos Support Group. Ehlers-Danlos Syndrome Western Canada. Living with Invisible Illness. Ehlers-Danlos Syndrome (EDS) for Kids. Ehlers-Danlos and Joint Hypermobility Syndrome Australia. EDSAUS - EDS Support in Australia Forum. Yoga for Ehlers-Danlos Syndrome.

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Words. – Some Beautiful Tragedies.

https://somebeautifultragedies.wordpress.com/2014/12/12/words

December 12, 2014. I expected many things in life. I expected that I would have the typical “white picket fence” American dream. Because I have words. I have a voice where I once felt I had none. I have a heart and it’s still beating hard. I write for the same reason. I like having my own words. Hi There D.C. 2 thoughts on “ Words. December 23, 2014 at 5:27 am. God bless you Emily, you are in my thoughts and prayers. March 3, 2015 at 3:01 pm. Http:/ www.stuckshakey.com. Http:/ www.rogercampy.com. Your Gr...

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Hi There D.C. – Some Beautiful Tragedies.

https://somebeautifultragedies.wordpress.com/2015/02/23/hi-there-d-c

February 23, 2015. Hi There D.C. I’m happy to announce that I was awarded a travel scholarship from the Everylife Foundation to travel to Washington D.C. and meet with our countries legislators. That being said, I’ll give you a quick overview of what the past few days have been like in terms of travel. 02/20 – We got on the road a little past 9pm and drove to Indiana. 02/21 – We drove through Ohio. I found out that in Ohio gummy worms and gummy bears count as “healthy snacks.”. Now I have a cocktail part...

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Random Late-night Thoughts (Reflection) – Some Beautiful Tragedies.

https://somebeautifultragedies.wordpress.com/2014/08/05/random-late-night-thoughts-reflection

August 5, 2014. September 12, 2014. Random Late-night Thoughts (Reflection). Today I went to the doctor. I’ll tell you the basics – I lost 5 pounds, apparently I need to go to GI because I might have gastroparesis (stomach paralysis), my hands are pretty cold, and my body probably disperses its blood flow to my vital organs and doesn’t leave much room for anything else. My care is also probably going to be transferred to Lurie or MCH I think? And No One’s Gonna Tear Me Down. August 6, 2014 at 3:08 pm.

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And No One’s Gonna Tear Me Down. – Some Beautiful Tragedies.

https://somebeautifultragedies.wordpress.com/2014/07/20/and-no-ones-gonna-tear-me-down

July 20, 2014. July 20, 2014. And No One’s Gonna Tear Me Down. I’ll get to the meaning of the title in a bit). My gun wound (and the rest of my ensemble). They told us to cover our ears as they began firing blanks. It was loud and the smell of smoke quickly occupied the halls. After that, he was dead and I was told to scream and cry. I spent around an hour (on and off) screaming and crying as emergency personal and camera crews flooded the halls,. 8220;Help me, I’ve been shot.”. I learned a valuable life...

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The Things They Don’t Tell You – Some Beautiful Tragedies.

https://somebeautifultragedies.wordpress.com/2015/04/19/the-things-that-they-dont-tell-you

April 19, 2015. April 19, 2015. The Things They Don’t Tell You. When you get diagnosed with something that needs medical intervention because it’s not going to go away on its own, or not going to go away. Start recovering. They don’t tell you how to deal with your fear or handle your emotions when a friend comes close to death from complications of your shared diagnosis. They don’t explain the sudden awareness of the world around you that seems to grow with every passing second. Hi There D.C.

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Friday – Some Beautiful Tragedies.

https://somebeautifultragedies.wordpress.com/2014/09/12/friday

September 12, 2014. September 12, 2014. The air turned crisp and cold yesterday. I enjoy the seasons in the strangest respect. Once every year the grass fades brown and the leaves fall off of the trees but we believe without a shadow of a doubt that when spring comes around everything will turn new and beautiful again, just the same as it was. If only we could live with such certainty about all aspects of life. That’s all for today. I’ll write again soon. Random Late-night Thoughts (Reflection). You are ...

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And Welcome To Emily's Fight. A note from Emily -. If you are having trouble gaining a diagnosis or coping with the stress that comes from living with or having a family member that lives with a little known diagnosis, please don't hesitate to contact me. I'd be happy to help you find supportive services and/or give you links to the services that I'm aware of. For an comprehensive list of rare disease organizations by diagnosis, please visit my resource page. Watch my TEDx talk below.

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