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Learning To Live

Dancing through life despite cystic fibrosis, PTSD and all that other stuff

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Learning To Live | dancing65roses.blogspot.com Reviews
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Dancing through life despite cystic fibrosis, PTSD and all that other stuff
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learning to live,posted by carla,1 comments,perspective,0 comments,forty,i’m home,the general background,transplant,2 comments,i'm still here,depression dave,i am depressed,go away,older posts,my blog list,dooce main feed,1 year ago,carla's craft blog
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Learning To Live | dancing65roses.blogspot.com Reviews

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Dancing through life despite cystic fibrosis, PTSD and all that other stuff

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Learning To Live: May 2013

http://dancing65roses.blogspot.com/2013_05_01_archive.html

Dancing through life despite cystic fibrosis, PTSD and all that other stuff. Sunday, May 19, 2013. Today is Great Strides. I am not going. This has been a long and agonizing decision for me. Ultimately I am doing what I can emotionally and physically and I shouldn’t beat myself up for this. But I will probably continue to do so anyways. I started a Great Strides team in 2006. Four people walked with me that year: Darin, Sarah, Callie and Carly. Each year since my team has grown and evolved. Every donatio...

2

Learning To Live: June 2014

http://dancing65roses.blogspot.com/2014_06_01_archive.html

Dancing through life despite cystic fibrosis, PTSD and all that other stuff. Wednesday, June 25, 2014. Three Years Ago Today. Give me a hug! My date and I talked about our families – my brother, his sister, and our parents. He impressed me by telling me how much he admires and looks up to his little sister and how they talk once a week – usually on Sunday. I remember thinking how thrilled I’d be if my brother called me once a week. I’ll talk to you soon! Happy three years since our first date! I made a m...

3

Learning To Live: March 2014

http://dancing65roses.blogspot.com/2014_03_01_archive.html

Dancing through life despite cystic fibrosis, PTSD and all that other stuff. Sunday, March 23, 2014. Tonight I remembered the reason I write this blog. I got an email from the granddaughter of a former coworker of my father. She told me that I am amazing and strong. She said she'd like to talk to someone who also has health problems and knows what it's like. Saturday, March 8, 2014. You look exactly like my friend, but she's dead." is not the most tactful thing to say in public. Dance in the Graveyards".

4

Learning To Live: Three Years Ago Today

http://dancing65roses.blogspot.com/2014/06/three-years-ago-today.html

Dancing through life despite cystic fibrosis, PTSD and all that other stuff. Wednesday, June 25, 2014. Three Years Ago Today. Give me a hug! My date and I talked about our families – my brother, his sister, and our parents. He impressed me by telling me how much he admires and looks up to his little sister and how they talk once a week – usually on Sunday. I remember thinking how thrilled I’d be if my brother called me once a week. I’ll talk to you soon! Happy three years since our first date! What insti...

5

Learning To Live: Soggy Grilled Cheese

http://dancing65roses.blogspot.com/2014/10/soggy-grilled-cheese.html

Dancing through life despite cystic fibrosis, PTSD and all that other stuff. Tuesday, October 28, 2014. Tonight I found myself sitting at the food court at the mall, sobbing into a grilled cheese sandwich. I had been telling my husband about the therapy session I had this morning and I just couldn't hold it together any longer. Today we were talking about my mother. I saw her smile and laugh and have a really good time with my dad. I didn't know she still knew how to have fun like that. It's been four mo...

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Princess Talana's Kingdom: Bad Times are gone!

http://talanaf.blogspot.com/2010/11/bad-times.html

Sunday, November 14, 2010. Bad Times are gone! An update on the major changes in our lives to come soon! Bad times here at the Fairfax household. As of Thursday, Matt unexpectedly lost his job when his company shuttered their doors. They were the whole reason behind our move to Vegas last December, and now we have nothing coming in beyond my disability. Subscribe to: Post Comments (Atom). View my complete profile. Extra Doses of Randomness. aka Twitter. Follow me on Twitter. Jessi - My Cyster all the Way!

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Princess Talana's Kingdom: Conner

http://talanaf.blogspot.com/2010/06/conner.html

Friday, June 25, 2010. When I can't breathe. When the bills are too much to pay. But nothing is greater than the rage, sadness, and desperation for refuge that I feel when a young child dies of this beast. You fought so hard. Peace and love to your family, as you finally run and play without gasping for breath. Subscribe to: Post Comments (Atom). Hello, I'm Talana, I'm 29, married, I have CF, and this is my life. Use the History Tag (in the list below to find out about me). View my complete profile.

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Princess Talana's Kingdom: The Elephant in the Room

http://talanaf.blogspot.com/2010/02/elephant-in-room.html

Wednesday, February 24, 2010. The Elephant in the Room. In reply to the blog:. Vertex is the greatest hope in a long time, but it is still not a cure, and it's unknown what the long term battle with CF will look like with it. Yes, CF sucks. Yes, we need to fight. But hiding the truth, as it now stands, about CF, doesn't make you, or G, or any cystic, any less of a fighter. And in reply to the comment that said I was making the fight harder:. Subscribe to: Post Comments (Atom). View my complete profile.

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Princess Talana's Kingdom: You may think less of me, but this is what I think...

http://talanaf.blogspot.com/2010/01/you-may-think-less-of-me-but-this-is.html

Saturday, January 9, 2010. You may think less of me, but this is what I think. My friend Sarah, posted a link to this blog. Because I would give up my hair, my breasts, even a leg to have a chance at being cured. But it's not that simple with CF. You can live without boobs. You can live without hair, get by without legs. You can't live without lungs. Oh well, you are alive to wear those clothes! So maybe I should make my own meme. what color of mucus are you coughing up today. post the color in y...Hello...

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Carla's Craft Blog: Startings of a Scarf

http://dancing65rosescrafts.blogspot.com/2010/09/startings-of-scarf.html

Sunday, September 12, 2010. Startings of a Scarf. Bought yarn and beads in Seattle. Carla's on the go! Post from her iPhone. Subscribe to: Post Comments (Atom). View my complete profile. Learning to Live - The Main Blog. Ravelry - A Knitting Favorite. Startings of a Scarf. Dress of Doom Update. Watermark template. Powered by Blogger.

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Carla's Craft Blog: One Quilt, Two Quilt

http://dancing65rosescrafts.blogspot.com/2011/01/one-quilt-two-quilt.html

Monday, January 10, 2011. One Quilt, Two Quilt. One Quilt, Two Quilt, Three Quilt, Four? I hope there isn't a fourth! I finished my T-shirt quilt and need to post photos of that. I have cut squares for what I'm calling a rainbow quilt, and here are photos of how that one is coming:. In the meantime I would like to post photos of projects I've completed (mostly knitting, but maybe a couple other quilts), and keep this blog more up-to-date. Also, I need to keep my main blog updated as well, so we'll se...

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Cystic Fibrosis and Life: 05/06/15

http://www.azerscfwebsite.com/2015_05_06_archive.html

May 6, 2015. His vitals were great, but his Fev1 was down to the lower 70's. We are doing a course of oral antibiotics and steroids. If there isn't improvement at his next clinic visit in a few weeks, it might be time for IV antibiotics. It's been a few years since his last admission, so we've been pretty lucky. Also wanted to let everyone know that it is 24 days until the CF walk. It will be on Saturday, May 30th at the Vitruvian Park in Addison. Check in time is at 8am and the walk starts at 9am. Cysti...

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Princess Talana's Kingdom: It's been awhile...

http://talanaf.blogspot.com/2009/12/its-been-awhile.html

Wednesday, December 9, 2009. Several friends have died of CF. Close friends. ones that I'm not sure I am even ready to process their passing, and am frightened about my own well being. one was even healthier than me. before she came down with H1N1. Each deserve their own words, when I am ready. and tonight I am ready to give words to Paul Mooney, lovingly known as Q. Thank you Q, for making me feel like I had some worth. I may even be able to finish that book, in your hono. View my complete profile.

talanaf.blogspot.com talanaf.blogspot.com

Princess Talana's Kingdom: Silly Canada

http://talanaf.blogspot.com/2010/03/silly-canada.html

Monday, March 22, 2010. When I was a very little girl, I thought that since both Heaven and Washington were up, that clearly, when I looked at the sky, I was looking at the bottom of Washington, and the people in Washington were looking at the bottom of Heaven. Imagine my surprise when I learned that Canada was above Washington, and up meant nothing on a sphere. Subscribe to: Post Comments (Atom). View my complete profile. Extra Doses of Randomness. aka Twitter. Follow me on Twitter. Amy - Amazing Cyster.

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Learning To Live

Dancing through life despite cystic fibrosis, PTSD and all that other stuff. Tuesday, October 4, 2016. Fall: Then and Now. I love fall. I'm not a pumpkin spice girl, but I am a boots girl. I bought two new pairs this fall because I love boots so much - I have boots in 4 colors now. So I think I'm set for awhile. I'm thankful I can make my meals. I'm thankful Dan can spend the whole day at work without worrying about me falling or calling him because I'm in some desperate need of help. I love my dance fri...

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Carla's Craft Blog

Monday, January 10, 2011. I made a mistake in the quilt. The big, complicated quilt for Darin - yeah, I made a big oops. The sparkly purple was supposed to run down the diagonal in the middle, but instead, I sewed it so the red was going down the middle - except for in one place. So the red diagonal - looks amazing, doesn't it? Had the quilt been for me, I would have sewn in the square with the mistake, but this is for my brother and he's a perfectionist. BUT, I have sent him this photo already and h...

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Carla's Travel Photos

Sunday, March 15, 2009. Day Two: San Jose, Monterey, and Big Sur (kinda). Today was a fabulous day! A casual breakfast, then driving to Monterey. Monterey is gorgeous and a pretty typical US Tourist Town. We went to the aquarium and did some shopping. The highlight for me was actually eating lunch on the deck at the aquarium :-). J had packed us fabulous sandwiches, fruit and yogurt. After lunch we went shopping (you don't want to know how much salt water taffy I bought). Saturday, March 14, 2009. San Jo...

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