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CADASIL Together We Have Hope Non-Profit - Official Site

Content="Since 2005, we have been devoted to promoting awareness, education, support, and research for CADASIL patients, families, friends, and health care provider.http:/ cadasilfoundation.org ". CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy). These are families who has shared their experiences with how they deal with CADASIL. Since CADASIL has so many different symptoms, it is impossible to find a caregivers group just for CADASIL. CADASIL Together ...

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Content=Since 2005, we have been devoted to promoting awareness, education, support, and research for CADASIL patients, families, friends, and health care provider.http:/ cadasilfoundation.org . CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy). These are families who has shared their experiences with how they deal with CADASIL. Since CADASIL has so many different symptoms, it is impossible to find a caregivers group just for CADASIL. CADASIL Together ...
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CADASIL Together We Have Hope Non-Profit - Official Site | cadasilfoundation.org Reviews

https://cadasilfoundation.org

Content="Since 2005, we have been devoted to promoting awareness, education, support, and research for CADASIL patients, families, friends, and health care provider.http:/ cadasilfoundation.org ". CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy). These are families who has shared their experiences with how they deal with CADASIL. Since CADASIL has so many different symptoms, it is impossible to find a caregivers group just for CADASIL. CADASIL Together ...

INTERNAL PAGES

cadasilfoundation.org cadasilfoundation.org
1

CADASIL What is it - official site

http://www.cadasilfoundation.org/what.html

CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy) is a hereditary autosomal dominant disease affecting all the small cerebral arteries. It causes subcortical infarcts and damages the white matter (leukoencephalopathy) and it is due to various mutations of the Notch3 gene situated on chromosome 19. Despite the diffuse damage to small arteries in all organs, the clinical manifestations of the disease are only neurological and restricted to the brain. This ...

2

CADASIL - Questions and Answers Official Site

http://www.cadasilfoundation.org/faq-home.html

This section was created so you can view questions and answers to some common queries about CADASIL. If you cannot locate your answer, please contact us so we can present your question on to our Scientific Advisory Committee. Does hemplegic migraines have anything to do with CADASIL? If a patient had a skin biopsy and it was positive but the blood test was negative, what should the patient do? Click on the subject your are interested in or you may scroll down. Course of the Disease. History of the Disease.

3

CADASIL - Studies Official Site

http://www.cadasilfoundation.org/Studies.html

Most recent cohort study in Europe http:/ www.cadasilfoundation.org/STROKE%20-%20CADASIL.pdf. CADASIL Studies from around the world. If reserachers are wanting patient for a study. Potential patients are notified directly by us. It will be their decision to contact the study Coordinator if they are interested in participating in a study which is recruiting. 2016 CADASIL Disease Discovery Protocol. 2016 Paris, France. 2014 Study in Germany. 2011 New York University Study. WHAT IS A RESEARCH STUDY? Researc...

4

CADASIL Volunteers

http://www.cadasilfoundation.org/volunteer.html

Please remember we are a volunteer non-profit, have no paid staff, and run solely on donations. CADASIL Together We Hope needs the time and talent of volunteers to help us create a world where CADASIL is a well known like other diseases. Whatever your capabilities and interests are, we can find a volunteer opportunity that's right for you. The key to our success rests in people like you, who embody the spirit of greatness by saying, "Yes I can, and so can you! Aluable is the work you do.

5

CADASIL - Understanding Testing for this rare genetic disease

http://www.cadasilfoundation.org/CADASILtesting.html

It is important for you to know that there is nothing that you or your family did that caused you to inherit the CADASIL gene. We have no control over the genes we inherit, just as we have no control over the genes we pass on to our own children. Should I Get Tested? Before testing family members for CADASIL, it is very important that a careful discussion of the pros and cons is carried out. This is usually performed by a genetic counselor. Explains what two tests are done to confirm diagnosis.

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janetmills.net janetmills.net

Author Bio

http://www.janetmills.net/styled-2/index.html

Janet Mills, Author. Writing from the heart ♥. Janet Mills is an avid reader who began writing stories in early childhood. While her reading interests include nearly every fiction and non-fiction category, she loves to end her own books on a happy note. She has written and published western historical romances, contemporary romances, and short stories. She is currently writing a book that is a complete departure from her previous works. Told in first-person,. Scenes from Italian book.

en.wikipedia.org en.wikipedia.org

CADASIL syndrome - Wikipedia, the free encyclopedia

https://en.wikipedia.org/wiki/CADASIL_syndrome

From Wikipedia, the free encyclopedia. From patients with CADASIL showing multiple lesions. Classification and external resources. Cerebral Autosomal-Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy. Is the most common form of hereditary stroke. Disorder, and is thought to be caused by mutations of the Notch 3. Gene on chromosome 19. The disease belongs to a family of disorders called the Leukodystrophies. Or strokes, which usually occur between 40 and 50 years of age, although MRI.

eueocadasil.blogspot.com eueocadasil.blogspot.com

eu e o cadasil: Férias 2

http://eueocadasil.blogspot.com/2011/12/ferias-2.html

Eu e o cadasil. Sexta-feira, 16 de dezembro de 2011. Resolvemos cavar um buraco no jardim e fazer um laguinho para nossa tartaruga. Na verdade ela é um cágado. Mas com essa história de nova ortografia, ainda não sei direito que acento ficou ou caiu e acho melhor por via das dúvidas continuar escrevendo tartaruga =). Cimentamos, colocamos pedrinha e fizemos até uma fonte com um vaso velho que andava dando sopa. Colocamos a tartaruga e ficamos tão orgulhosos! Compartilhar com o Pinterest.

eueocadasil.blogspot.com eueocadasil.blogspot.com

eu e o cadasil: Janeiro 2012

http://eueocadasil.blogspot.com/2012_01_01_archive.html

Eu e o cadasil. Segunda-feira, 23 de janeiro de 2012. Não, não errei o título. CARASIL é a forma recessiva da mesma doença e já existem pesquisas sobre ela. Digitem no google, o sabe tudo, e vão encontrar alguns artigos. Os sintomas são os mesmos o que muda é que há chances para os "herdeiros". Lembrei disso depois de receber um comentário com a preocupação do teste genético nos filhos. Links para esta postagem. Compartilhar com o Pinterest. Links para esta postagem. Compartilhar com o Pinterest. Links p...

eueocadasil.blogspot.com eueocadasil.blogspot.com

eu e o cadasil: Julho 2011

http://eueocadasil.blogspot.com/2011_07_01_archive.html

Eu e o cadasil. Domingo, 3 de julho de 2011. Como algumas pessoas nascidas no século passado, tenho um pouco de resistência às novas tecnologias, sobretudo quando se trata de internet. Meus filhos não. Nasceram com o mouse no lugar do cordão umbilical. Para mim tem sido mais um exercício para o cérebro, por isso tenho tentado melhorar minha convivência com o computador. Jargão da net, viu como aprendo? De histórias de vida parecidas. Por que não apareço então? Gostaria de me explicar:. Trabalhei com uma ...

eueocadasil.blogspot.com eueocadasil.blogspot.com

eu e o cadasil: Pesquisas

http://eueocadasil.blogspot.com/2012/01/pesquisas.html

Eu e o cadasil. Segunda-feira, 23 de janeiro de 2012. Tarefa de casa: ler todas as páginas das últimas pesquisas sobre Cadasil em inglês.no link abaixo:. Compartilhar com o Pinterest. Assinar: Postar comentários (Atom). Visualizar meu perfil completo. Cadasil no site Saúde e Vida. Cadasil em uma família catarinense. Cadasil: um novo diagnóstico diferencial para as demências de origem vascular. Blog A Family Coping With CADASIL. Total de visualizações de página. Modelo Ethereal. Tecnologia do Blogger.

eueocadasil.blogspot.com eueocadasil.blogspot.com

eu e o cadasil: Aviso aos navegantes!

http://eueocadasil.blogspot.com/2012/02/aviso-aos-navegantes.html

Eu e o cadasil. Sexta-feira, 24 de fevereiro de 2012. Bem pessoal, comecei a achar que esse blog não tem muito mais motivo para existir. Esperava trocar experiências com pessoas que estão com o mesmo problema e isso não aconteceu. Apesar de ter recebido alguns e-mails de pessoas contando suas histórias, foram sempre e-mails de não portadores de Cadasil. E também foram e-mails que não puderam ser compartilhados e ajudar alguém. Compartilhar com o Pinterest. 10 de março de 2012 07:57. Fiquei triste em rela...

eueocadasil.blogspot.com eueocadasil.blogspot.com

eu e o cadasil: Novembro 2011

http://eueocadasil.blogspot.com/2011_11_01_archive.html

Eu e o cadasil. Quarta-feira, 16 de novembro de 2011. Ninho de sabiá na minha jabuticabeira. Links para esta postagem. Compartilhar com o Pinterest. Links para esta postagem. Compartilhar com o Pinterest. Domingo, 13 de novembro de 2011. Abri o blog agora, depois de uma semana. Li os comentários de incentivo no blog e também os que vão direto pro meu e-mail e QUE VERGONHA! Depois de quase duas semanas me esforçando com a dieta, acabei dando uma escorregada bem feia hoje depois do almoço. Preciso perder u...

cervco.fr cervco.fr

Liens | CERVCO

http://www.cervco.fr/fr/liens

Maladies Rares Info Services. Association de malades Cadasil. Cadasil (association de patients - Etats Unis). Association des Paralysés de France. Service d’ophtalmologie Hôpital Lariboisière. The macular telangiectasia project. Centre de réf des maladies vasculaires rares. Groupe français d'étude des vascularités. Haute Autorité de Santé. Ministère de la recherche. Société Française de Neurologie. Protocoles de prise en charge. Sur le site du CERVCO. Les actualités du CERVCO.

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SOCIAL ENGAGEMENT



OTHER SITES

cadasilassociation.com cadasilassociation.com

cureCADASIL Home

Helmetta, NJ 08828. Helmetta, NJ 08828. 2013 CON DVD Orders. 2013 CADASIL Awareness Day. Learn more about Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy. Our listing includes Doctors from the US, Canada, Europe, Africa, and other regions of the world, with most recommended by CADASIL patients and families. At this time, our most active support groups are on Facebook. Please read the information for each group to decide which one(s) are best for you. Several cur...

cadasilassociation.org cadasilassociation.org

cureCADASIL Home

Helmetta, NJ 08828. Helmetta, NJ 08828. 2013 CON DVD Orders. 2013 CADASIL Awareness Day. Learn more about Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy. Our listing includes Doctors from the US, Canada, Europe, Africa, and other regions of the world, with most recommended by CADASIL patients and families. At this time, our most active support groups are on Facebook. Please read the information for each group to decide which one(s) are best for you. Several cur...

cadasilcoping.blogspot.com cadasilcoping.blogspot.com

A Family Coping With CADASIL

A Family Coping With CADASIL. Friday, February 4, 2011. This made me Laugh. My dad used to sing this song ALL the time. Tuesday, December 28, 2010. We need a Christmas Break. The last few days, ever since Christmas really, my mother has had a bad migraine. Then she caught the flu from me. I was taught to share *shrug*. It is day 4 of her migraine and while i am starting to feel better, and her flu symptoms where actually not that bad, her headache has gotten worse. Friday, December 10, 2010. When my dad ...

cadasilforum.org cadasilforum.org

The CADASIL Forum - Home

2012 CADASIL Forum Conference. 2012 CADASIL Forum Conference. 2012 CADASIL Forum Conference. The CADASIL Forum is proud to support. The CADASIL ASSOCIATION 2013 Boston Conference. Which will be held June 27-29, 2013 in Boston, Massachusetts. Conference Details and Registration. What medications and treatments have you found helpful? How do patients educate the medical community about CADASIL? Considerations in genetic testing for CADASIL. What topics would you like discussed on this forum? Additionally, ...

cadasilfoundation.com cadasilfoundation.com

CADASIL Together We Have Hope Non-Profit - Official Site

Content="Since 2005, we have been devoted to promoting awareness, education, support, and research for CADASIL patients, families, friends, and health care provider.http:/ cadasilfoundation.org ". CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy). These are families who has shared their experiences with how they deal with CADASIL. Since CADASIL has so many different symptoms, it is impossible to find a caregivers group just for CADASIL. CADASIL Together ...

cadasilfoundation.org cadasilfoundation.org

CADASIL Together We Have Hope Non-Profit - Official Site

Content="Since 2005, we have been devoted to promoting awareness, education, support, and research for CADASIL patients, families, friends, and health care provider.http:/ cadasilfoundation.org ". CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy). These are families who has shared their experiences with how they deal with CADASIL. Since CADASIL has so many different symptoms, it is impossible to find a caregivers group just for CADASIL. CADASIL Together ...

cadasilo.over-blog.com cadasilo.over-blog.com

Le blog de l'association CADASILO - La vie et les aventures de l'association cadasilo

Le blog de l'association CADASILO. DEMAIN : 6e Festival du 13aime. Le temps semble vouloir nous jouer de mauvais tours,. Mais restons optimistes,. Il y aura bien quelques rayons de soleil et quelques degrés de plus. Demain entre 14h et 18h. Et même sil pleut ou neige,. Le FESTIVAL du 13AIME aura lieu. Vous retrouvez alors les ateliers à lintérieur du centre danimation Daviel. Et le grand spectacle de cirque, quelque peu modifié,. Y aura également lieu dans laprès-midi. Venez donc nombreux,. Et pour un ac...

cadasiltrust.org cadasiltrust.org

闇金被害に遭わないために

cadasilva.com cadasilva.com

Author c a da silva, C A da Silva carla silva News

The Face of a Life Lived. The Weight of Regret. The Face of a Life Lived. The Weight of Regret. C A da Silva. The Face of a Life Lived. The Weight of Regret. The Face of a Life Lived. The Weight of Regret. Writing is an art. THE FACE OF A LIFE LIVED. By C A da Silva. Writers and Artists Short Story Competition 2014. By C A da Silva. I stood at his graveside contemplating the inevitable finality of. Behind every successful author are hours of agonising doubt, courage and persistence.

cadasiro.blogspot.com cadasiro.blogspot.com

BlOg De RaBaDiLlA

Jueves, 30 de diciembre de 2010. Ahhh, que bien se siente, regreso para hacer mi último post del 2010, ya que en el 2011 espero que tengamos muchas cosas nuevas, al parecer, Isabel no posteó por que ella y yo hicimos un acuerdo; postear un día ella y al siguiente yo y así consecutivamente, pero bueno, eso es otro tema. Muchas gracias a todos por seguirnos visitando, les debemos mucho. Ahora les traigo un episodio de cada una de las series que se han subido a este blog:. Love Hina episodio 4. Aqui está el...

cadasist.com cadasist.com

cadasist.com -&nbspThis website is for sale! -&nbspcadasist cad asist Resources and Information.

The owner of cadasist.com. Is offering it for sale for an asking price of 3500 EUR! This page provided to the domain owner free. By Sedo's Domain Parking. Disclaimer: Domain owner and Sedo maintain no relationship with third party advertisers. Reference to any specific service or trade mark is not controlled by Sedo or domain owner and does not constitute or imply its association, endorsement or recommendation.