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Bevin’s Adventures with Juvenile Rheumatoid Arthritis

Friday, July 25, 2014. Losing a part of our JA Family. Yesterday on the KGAT website ( www.kidsgetarthritistoo.org. There was a great article written by a JA parent, Colleen Ryan, regarding our Juvenile Arthritis Families. For those of you who know, or know of, Colleen you know how absolutely awesome she is. For those who do not know Colleen, she is an absolute inspiration in our JA world. Those people have become known as our “JA Family”. My JA family also consists of the doctors that treat Bevin. There...

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Bevin’s Adventures with Juvenile Rheumatoid Arthritis | bevinsadventureswithjra.blogspot.com Reviews
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Friday, July 25, 2014. Losing a part of our JA Family. Yesterday on the KGAT website ( www.kidsgetarthritistoo.org. There was a great article written by a JA parent, Colleen Ryan, regarding our Juvenile Arthritis Families. For those of you who know, or know of, Colleen you know how absolutely awesome she is. For those who do not know Colleen, she is an absolute inspiration in our JA world. Those people have become known as our “JA Family”. My JA family also consists of the doctors that treat Bevin. There...
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Bevin’s Adventures with Juvenile Rheumatoid Arthritis | bevinsadventureswithjra.blogspot.com Reviews

https://bevinsadventureswithjra.blogspot.com

Friday, July 25, 2014. Losing a part of our JA Family. Yesterday on the KGAT website ( www.kidsgetarthritistoo.org. There was a great article written by a JA parent, Colleen Ryan, regarding our Juvenile Arthritis Families. For those of you who know, or know of, Colleen you know how absolutely awesome she is. For those who do not know Colleen, she is an absolute inspiration in our JA world. Those people have become known as our “JA Family”. My JA family also consists of the doctors that treat Bevin. There...

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Bevin’s Adventures with Juvenile Rheumatoid Arthritis: October 2011

http://bevinsadventureswithjra.blogspot.com/2011_10_01_archive.html

Wednesday, October 26, 2011. Bevin getting a shot. 10 months into giving Bevin her shots I finally took the time to get a video of it. Some “shot nights” are better than others, this one was nowhere near the worse, but we’ve had better. Overall she handles it pretty well…. Labels: Getting a shot. Monday, October 24, 2011. Honoree for the 2012 Walk. The 2012 Walk sight is up with Bevin on the home page! Http:/ sacarthritiswalk.kintera.org/faf/search/searchTeamPart.asp? Thank you for all of the support!

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Bevin’s Adventures with Juvenile Rheumatoid Arthritis: 2014 Juvenile Arthritis Conference in Keystone, CO

http://bevinsadventureswithjra.blogspot.com/2014/07/2014-juvenile-arthritis-conference-in.html

Wednesday, July 9, 2014. 2014 Juvenile Arthritis Conference in Keystone, CO. Another year and another JA Conference! This is our FOURTH conference year (DC, St. Louis, Anaheim and now Colorado)! This year the conference was held at the Keystone Resort in Colorado! Http:/ www.keystoneresort.com/. It is BEAUTIFUL there and they have SO much to do! I will definitely have to look into a family vacation there down the road! Then we got up bright and early and finished our trek to Keystone! We took a quick bre...

3

Bevin’s Adventures with Juvenile Rheumatoid Arthritis: November 2011

http://bevinsadventureswithjra.blogspot.com/2011_11_01_archive.html

Thursday, November 17, 2011. A year ago today…. A year ago today my baby girl, at just 21 months old, was diagnosed with Juvenile Rheumatoid Arthritis…something we knew nothing about. Now, 12 months later, our lives are a little different, we are by no means JA experts, but there’s definitely so much more we know now that we didn’t know then. In the last 12 months Bevin has had:. 44 injections of Methotrexate (that’s more injections than vaccines! 694 doses of Naproxen. But because of the JA we:. People ...

4

Bevin’s Adventures with Juvenile Rheumatoid Arthritis: May 2012

http://bevinsadventureswithjra.blogspot.com/2012_05_01_archive.html

Monday, May 14, 2012. 2012 Sacramento Arthritis Walk. Since the walk was held last Saturday (May 5. I thought it was time I updated everyone with pictures, the video of us on stage and our fundraising total. This year we raised $4851! That’s over $1500 more than we raised last year! A huge thank you and heartfelt appreciation goes out to all of those who helped up reach that amount. As most of you know we collect recyclables and cash them in towards our fundraising for the walk team. Friday, May 11, 2012.

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Bevin’s Adventures with Juvenile Rheumatoid Arthritis: June 2013

http://bevinsadventureswithjra.blogspot.com/2013_06_01_archive.html

Tuesday, June 11, 2013. I keep meaning to get on here an update everyone with how Bev has been doing, but frankly, life happens and I slack off. The last year has been pretty busy with us and I just haven’t had a lot of time. But the good news that I have to share is that BEVIN IS IN REMISSION! As of Thursday May 23. She had her last MTX shot for hopefully a really long time! She is currently medication free and has no active arthritis! Bev after her getting her labs done, prior to her appointment. My hu...

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thesloansiblings-myjraheros.blogspot.com thesloansiblings-myjraheros.blogspot.com

The Sloan Siblings JRA Journey: November 2012

http://thesloansiblings-myjraheros.blogspot.com/2012_11_01_archive.html

The Sloan Siblings JRA Journey. Many of our close friends and family often ask "how are the kids doing"? Most people do not understand what Juvenile Rheumatoid Arthritis (JRA) really is and how it deeply affects Jake, Hannah, and our entire family! Sometimes all I can do is walk away, hide my tears, and just pretend all is okay! We share this JRA Journey with you and hope you can pray for Jake and Hannah and the other 300,000 children who suffer from JRA. My JRA Heros- Jake and Hannah. We thought Juvenil...

thesloansiblings-myjraheros.blogspot.com thesloansiblings-myjraheros.blogspot.com

The Sloan Siblings JRA Journey: Don't Stop Believin......

http://thesloansiblings-myjraheros.blogspot.com/2012/03/dont-stop-believin.html

The Sloan Siblings JRA Journey. Many of our close friends and family often ask "how are the kids doing"? Most people do not understand what Juvenile Rheumatoid Arthritis (JRA) really is and how it deeply affects Jake, Hannah, and our entire family! Sometimes all I can do is walk away, hide my tears, and just pretend all is okay! We share this JRA Journey with you and hope you can pray for Jake and Hannah and the other 300,000 children who suffer from JRA. My JRA Heros- Jake and Hannah. For Spring JA Fami...

junebugsbattlewithjra.blogspot.com junebugsbattlewithjra.blogspot.com

Amelia June's battle with JIA: REMISSION!!!!

http://junebugsbattlewithjra.blogspot.com/2013/12/remission.html

Tuesday, December 31, 2013. Friday we had a rheumy appointment and we've officially been classified as being in unmedicated remission! I wasn't expecting this until next month, I thought that the timeline was the same as medicated remission, 6 months after stopping a medication. More good news is she's nearing 30 pounds and is in the 50th percentile for her weight and we don't have to go back to see the rheumy for 6 months! 65279;. It's like a whole new beginning, we can just be. Amelia June survived ...

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Love, Lucianna: How to help!

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Share in Lucianna's journey to wellness from Uveitis and Pauciarticular JIA. My Tools and Gadgets. Join Jingle Bell Runs. Typically the beginning of December). DONATE TO THE UVEITIS FOUNDATION! Http:/ www.uveitis.org/giving/donate. Note: Only a member of this blog may post a comment. Subscribe to: Posts (Atom). Our story.(Video created December 2012 for the Jingle Bell Run. Thank you for the support.). FOLLOW HER PROGRESS BY EMAIL! One week before onset. 1 drop right eye every night (these burn). SEPT 20...

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Love, Lucianna: My Tools & Gadgets

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Share in Lucianna's journey to wellness from Uveitis and Pauciarticular JIA. My Tools and Gadgets. My Tools and Gadgets. The following are things that I have found useful, helpful, or have just come to rely on:. For her "meds check lists" for home and Lucianna's school. With so many meds, you can't always remember if you administered them or not. This really helps. I keep it on a clip board on my kitchen island.]. For hourly drops reminders:. Oral Syringe and Dosage Stopper:. First Years Ignite Stroller.

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Love, Lucianna: July 2014

http://lovelucianna.blogspot.com/2014_07_01_archive.html

Share in Lucianna's journey to wellness from Uveitis and Pauciarticular JIA. My Tools and Gadgets. Wednesday, July 2, 2014. Uveitis" - the disease that does not go away quietly. Lucianna and Bella - June 29, 2014. Dear Friends and Family,. On a happier note, we settled on our new home last Friday. We are still unpacking boxes but we are already feeling the benefits of a closer work commute. The girls love their new rooms and it's nice to have Daddy around more often! Wednesday, July 02, 2014. DISCONTINUE...

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Love, Lucianna: We knew this day may come...

http://lovelucianna.blogspot.com/2015/03/we-knew-this-day-may-come.html

Share in Lucianna's journey to wellness from Uveitis and Pauciarticular JIA. My Tools and Gadgets. Monday, March 16, 2015. We knew this day may come. We knew there may come a day that we'd have to give Lucianna her medicine by injection. It seems that day is here. So we are at a crossed roads.do we increase the Methotrexate and hope that it doesn't cause her liver to stop functioning the way it should? Do we add another medicine with it's own set of risks? Monday, March 16, 2015. One week before onset.

lovelucianna.blogspot.com lovelucianna.blogspot.com

Love, Lucianna: WHAT IS JIA/JRA?

http://lovelucianna.blogspot.com/p/what-is-jiajra.html

Share in Lucianna's journey to wellness from Uveitis and Pauciarticular JIA. My Tools and Gadgets. No child should have to suffer with this disease. All kids should have active fulfilling childhoods without chronic pain. Note: Only a member of this blog may post a comment. Subscribe to: Posts (Atom). Our story.(Video created December 2012 for the Jingle Bell Run. Thank you for the support.). FOLLOW HER PROGRESS BY EMAIL! One week before onset. Toughness is in the soul and spirit, not in muscles.". SEPT 2...

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Love, Lucianna: What is Uveitis?

http://lovelucianna.blogspot.com/p/what-is-uveitis.html

Share in Lucianna's journey to wellness from Uveitis and Pauciarticular JIA. My Tools and Gadgets. CLICK HERE: UVEITIS FOUNDATION WEB PAGE. What is JIA-associated Uveitis? Uveitis is an inflammation of the uvea, the layer between the sclera and the retina. Uveitis may not have obvious symptoms, and symptoms tend to develop slowly. Sometimes, children might say the light bothers them or they have blurred vision. If your child has been diagnosed with JIA, it is very important to see a pediatric oph...A tho...

thesloansiblings-myjraheros.blogspot.com thesloansiblings-myjraheros.blogspot.com

The Sloan Siblings JRA Journey: August 2011

http://thesloansiblings-myjraheros.blogspot.com/2011_08_01_archive.html

The Sloan Siblings JRA Journey. Many of our close friends and family often ask "how are the kids doing"? Most people do not understand what Juvenile Rheumatoid Arthritis (JRA) really is and how it deeply affects Jake, Hannah, and our entire family! Sometimes all I can do is walk away, hide my tears, and just pretend all is okay! We share this JRA Journey with you and hope you can pray for Jake and Hannah and the other 300,000 children who suffer from JRA. My JRA Heros- Jake and Hannah. We can't possibly ...

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Bevin’s Adventures with Juvenile Rheumatoid Arthritis

Friday, July 25, 2014. Losing a part of our JA Family. Yesterday on the KGAT website ( www.kidsgetarthritistoo.org. There was a great article written by a JA parent, Colleen Ryan, regarding our Juvenile Arthritis Families. For those of you who know, or know of, Colleen you know how absolutely awesome she is. For those who do not know Colleen, she is an absolute inspiration in our JA world. Those people have become known as our “JA Family”. My JA family also consists of the doctors that treat Bevin. There...

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Thursday, July 29, 2010. New Teaser Poster Image! Put together some in-progress renders to create this flyer to hand out at Siggraph. Environment is still a work-in-progress, but I'm relatively happy with how the lighting is turning out so far. Hoping to have at least a partial 3D animatic up here on the blog soon to show how the film is coming along, so check back for that in the coming weeks! Wednesday, July 21, 2010. Monday, July 19, 2010. In-Progress Characters and environments. Monday, July 05, 2010.

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